Evidence map›Paper›PMID 42046008›Full record

SynthesisBMC geriatrics2026

A systematic review of family carers' experience of compassion when caring for older adults.

Joel F Barnett, Nicola White, Laura Dillon, Pepsi Reilly, Elizabeth Sampson, Claudia Cooper, Nuriye Kupeli

Abstract readSystematic Review
In one paragraph

Synthesis in BMC geriatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Joel F BarnettMarie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK. joel.barnett.24@ucl.ac.uk.
Nicola WhiteMarie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK.
Laura DillonMarie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK.
Pepsi ReillyMarie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK.
Elizabeth SampsonCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, London, UK.
Claudia CooperCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, London, UK.
Nuriye KupeliMarie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK.

Funding

Alzheimer's Society 399 AS-JF- 17b-016
6 · The paper itself

Abstract

backgroundAlthough caring can be a rewarding experience, family carers of older adults frequently report isolation, stress, anxiety, and burden, which may hinder their ability to cultivate compassion for self and others. Cultivating compassion is associated with better psychological health and wellbeing and may therefore act as a protective factor against the adverse emotional impacts of caregiving.

objectivesThis review aims to: (1) understand carers' experiences, including the barriers and facilitators to cultivating and maintaining compassion when caring for older adults; (2) identify the tools that have been used to assess the experience of compassion in carers and to determine if they have been developed with this population; (3) explore if compassion as experienced by carers is related to other health and wellbeing outcomes.

methodsWe conducted a search across five electronic databases from inception to December 2025. Eligible peer-reviewed studies reported qualitative and/or quantitative data on experiences of compassion among family carers of older adults (aged > 65 years), or people living with dementia. Study quality was appraised using the Hawker tool. We used a narrative approach to synthesise the qualitative and quantitative data.

resultsTwenty-nine papers reporting 28 studies were included. Qualitative synthesis identified compassion as primarily other-directed, relational, and grounded in love, moral obligation, and identity. Compassion was facilitated by attachment, meaning, and alignment with carers' values, but undermined by emotional over-identification, chronic responsibility, fatigue, guilt, and limited support. Quantitative studies used a wide range of compassion-related constructs and measures, none of which were developed with carers. Quantitative evidence showed consistent associations between higher self-compassion and better psychological wellbeing, adaptive coping, and lower burden. Findings for compassion directed toward others were mixed, with emotionally over-engaged forms associated with distress, while motivational or value-based compassion was linked to more positive caregiving appraisals.

conclusionsCompassion in caregiving is a complex and relational phenomenon that can be both sustaining and burdensome. While self-compassion and receiving compassion from others appear protective, unbuffered compassion for others may increase vulnerability to distress. Future research should prioritise longitudinal designs, carer-specific measures of compassion, and interventions that support sustainable, relationally grounded compassion.

trial registrationPROSPERO CRD42019134233, registered 22 May 2019.

Indexed as

CaregiversEmpathyAdaptation, PsychologicalAgedHumansAdultsCarersCompassionDementiaReview

Identifiers

PMID42046008
PMCPMC13255380

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.