Evidence map›Paper›PMID 42045895›Full record

ArticleBMC palliative care2026

Experiences, perspectives and preferences for home-based palliative and supportive care: a qualitative study of individuals with heart failure and their carers.

Madhurangi Perera, William Parsonage, Patsy Yates, Gursharan K Singh

Abstract read
In one paragraph

Article in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Madhurangi PereraCentre for Healthcare Transformation, Faculty of Health, Queensland University of Technology, 88 Musk Avenue, Kelvin Grove, Brisbane, QLD, 4059, Australia. emmanuwelge.perera@hdr.qut.edu.au.ORCID http://orcid.org/0000-0002-6916-9010
William ParsonageCentre for Healthcare Transformation, Faculty of Health, Queensland University of Technology, 88 Musk Avenue, Kelvin Grove, Brisbane, QLD, 4059, Australia.
Patsy YatesCentre for Healthcare Transformation, Faculty of Health, Queensland University of Technology, 88 Musk Avenue, Kelvin Grove, Brisbane, QLD, 4059, Australia.
Gursharan K SinghCentre for Healthcare Transformation, Faculty of Health, Queensland University of Technology, 88 Musk Avenue, Kelvin Grove, Brisbane, QLD, 4059, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPalliative and supportive care provided in the home for individuals with heart failure and their carers can improve quality of life, reduce symptom burden and hospital admissions. However, enabling this care in accordance with what matters to individuals living with heart failure and their carers remains elusive. This research aimed to explore the experiences, perspectives and preferences of individuals with heart failure and their carers on home-based palliative and supportive care.

methodsA qualitative study using semi-structured interviews was conducted with individuals with heart failure and carers, recruited from two tertiary care hospitals in Queensland, Australia.

resultsA total of eleven individuals with heart failure and ten carers participated. Their age ranged between 40 and 84 years. Most participants were female (n = 14, 66.7%). The themes derived from thematic analysis centred on: (a) diverse strategies for seeking emotional support, (b) acknowledging the importance of carers, (c) effective information and communication, (d) the value of home-visits, (e) telehealth enhances care (f) a circle of care: health professionals and social services supporting the individual and carer, and (g) planning for future care.

conclusionInsights into the perspectives, experiences and preferences of individuals with heart failure and their carers are critical to delivering patient and carer centred palliative and supportive care in the home. Enhancing the circle of care through better communication, supporting carers and utilising telehealth, is required to deliver palliative and supportive care in the home in accordance with what matters to these individuals.

Indexed as

CaregiversHeart FailureHome Care ServicesPalliative CarePatient PreferencePerceptionAdultAgedAged, 80 and overFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchQuality of LifeHeart failureHome-based carePalliative carePreferencesQualitativeSupportive care

Identifiers

PMID42045895
PMCPMC13255324

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.