ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026
Long-term breast cancer survivors: experiences, needs, and proposals for person-centred care.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeLong-term breast cancer survivors experience permanent effects of cancer treatment such as reduced strength, aerobic capacity, and mobility, as well as cognitive, cardiac, or neurotoxic complications. This study aims to characterise the experience and needs of breast cancer survivorship care and to examine its alignment with the person-centred care model, based on the perspectives of long-term breast cancer survivors and the multidisciplinary professionals involved in their care.
methodsThis study co-created, with long-term breast cancer survivors and healthcare professionals, a patient journey map to visually describe their experiences. Healthcare-related needs were also prioritised, and solutions to improve health services were proposed.
resultsPerson-centred care in breast cancer survivorship is yet to be fully implemented. Five relevant areas of care were identified through independent focus groups and workshops: early recurrence detection, monitoring of potential physical consequences, psychological health, employment-related aspects, and healthy lifestyles. Being involved in the decision-making process and being listened to were identified as priority needs by patients. Meanwhile, healthcare professionals stressed the importance of improving communication with patients. Psychological support and care coordination were among the most important needs for both patients and healthcare professionals.
conclusionPotential solutions to address these needs included improving access to information and communication channels, increasing resources (such as rehabilitation, psychotherapy, case managers, and direct scheduling), and strengthening support for healthy lifestyle and employment, as well as creating specific training for healthcare professionals. Experiences and care needs of long-term breast cancer survivors were visualised in the patient journey map, which can be used for service redesign.
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