ArticleJournal of participatory medicine2026
Integrating Data Visualizations Into Digital Mental Health Care for Adults With Anxiety and Depression: Participatory Design and Case Study.
Article in Journal of participatory medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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6 authors.
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Abstract
Background: Digital phenotyping offers unprecedented opportunities for capturing real-time mental health data through smartphones, yet translating this data into clinically actionable insights remains challenging. While smartphones can generate nearly one million data points per patient per day, health care systems have struggled to incorporate even basic ecological momentary assessment data into routine care workflows. Objective: This paper presents a model for clinician-facing data visualizations that can be shared with patients to increase understanding of mental health symptoms and enhance shared decision-making. We describe (1) a participatory design process through which visualizations were cocreated with clinicians; (2) integration of these visualizations into a Digital Navigator-supported (DN) workflow; and (3) a case example illustrating how data visualizations can enhance patient insight and support treatment adjustments. Methods: This work was conducted within the Digital Clinic program at Beth Israel Deaconess Medical Center. Fifteen clinicians and 3 clinical supervisors participated in a participatory design process to develop visualizations meeting clinical workflow needs. Data visualizations were integrated into weekly DN sessions following a 3-phase model (guide, refinement, and autonomy) based on self-determination theory. Results: Six visualization types were developed: gauge charts for engagement behaviors, symptom trajectory graphs, correlation matrices linking passive and active data, sleep visualizations, polar/radar charts for multidimensional assessment, and passive-active data integration graphs. A clinical case demonstrates how these visualizations, when delivered through structured DN facilitation, supported patient engagement, behavioral insight, and autonomous self-management across an 8-week treatment program. Conclusions: Thoughtfully designed data visualizations, when developed collaboratively with clinicians and delivered through structured support, can transform digital phenotyping from a technical capability into a practical tool for enhancing engagement, promoting behavioral insight, and supporting self-management in digital mental health care. Future research should examine how this approach affects therapeutic alliance and clinical outcomes across diverse patient populations.
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