Evidence map›Paper›PMID 42029831›Full record

ArticleThe patient2026

Patients' Preferences for Surgical Procedures in Hidradenitis Suppurativa: A Discrete Choice Experiment.

Katja C Heinz, Emily G Summers, Charlotte Beaudart, Teja Mallela, Stephanie Goldberg, Melonie Brown, Keven M Brown, Christopher John Sayed, Mickael Hiligsmann

Abstract read
In one paragraph

Article in The patient, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Katja C Heinz *Department of Health Services Research, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands. katja.heinz@maastrichtuniversity.nl.ORCID http://orcid.org/0009-0002-2148-0675
Emily G Summers *Department of Dermatology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Charlotte BeaudartPublic Health Aging Research and Epidemiology (PHARE) Group, Research Unit in Clinical Pharmacology and Toxicology (URPC), NAmur Research Institute for LIfe Sciences (NARILIS), University of Namur, Namur, Belgium.ORCID http://orcid.org/0000-0002-0827-5303
Teja MallelaDepartment of Dermatology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Stephanie GoldbergDepartment of General Surgery, Mary Washington Healthcare, Fredericksburg, VA, USA.
Melonie BrownIndependent Researcher, Harrisburg, NC, USA.
Keven M BrownHidradenitis Suppurativa Foundation, Cary, NC, USA.
Christopher John SayedDepartment of Dermatology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.ORCID http://orcid.org/0000-0003-3201-4637
Mickael HiligsmannDepartment of Health Services Research, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.ORCID http://orcid.org/0000-0003-4274-9258

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BACKGROUND AND

objectiveHidradenitis suppurativa is a burdensome chronic inflammatory skin disorder. While surgery can be essential for many patients, preferences and values regarding surgery are insufficiently characterized. This study aimed to investigate preferences of adult patients with hidradenitis suppurativa in the USA when choosing an hidradenitis suppurativa surgery method.

methodsA discrete choice experiment was conducted. Patients were asked to choose between two hypothetical procedures 15 times. Literature review and patients with hidradenitis suppurativa and expert interviews informed treatment attributes selection. A mixed logit model was applied to estimate preference coefficients. Subgroup analyses and a latent class model were conducted.

resultsRelevant attributes for the 205 participants (90% female, aged 41 years) ranked as follows: effectiveness on lesion improvement (36.75%), recurrence/persistence risk (15.02%), out-of-pocket costs (13.27%), post-surgical wound care (13.27%), post-surgical pain duration (9.64%), recovery time (7.12%) and complications risk (4.94%). A latent class model revealed participants in class 1 including more people of White/Caucasian, Asian and Latino ethnicity and full-time and part-time employed and non-working people put a higher value on risk of return and less priority on wound care post-surgery and out-of-pocket costs. For participants of class 2 consisting of more people of Black or other ethnicity and self-employed, students or retired people, the opposite was observed.

conclusionsOf the evaluated attributes, effectiveness for improvement, recurrence risk, out-of-pocket costs and post-surgical wound care contributed most to patient preference. Surgeons should account for these aspects of procedures when offering surgical interventions. Studies of surgical outcomes should place high value on these aspects of procedural outcomes.

Indexed as

Choice BehaviorHidradenitis SuppurativaPatient PreferenceAdultFemaleHumansMaleMiddle AgedUnited States

Identifiers

PMID42029831
PMCPMC13506610

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.