ArticlePalliative care and social practice2026
Co-creating dementia knowledge and action in Ghana: Evidence from a participatory stakeholder workshop.
Article in Palliative care and social practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Background: Knowledge confined within academic or clinical silos has limited utility to influence policy. To bridge the gap between evidence and action, a participatory, co-creation workshop was convened of persons living with dementia, family carers, healthcare professionals, policy actors, spiritual or faith-based leaders, and community advocates in a collective process of dialogue, reflection, and solution design. Objectives: The research aimed to determine whether stakeholders' knowledge and attitudes towards dementia improved following the workshop. Methods: Data were drawn from a multi-method assessment from a participatory research dissemination and co-creation workshop held in Kumasi, Ghana. A non-parametric Wilcoxon signed-rank test was selected as the primary analytical tool for the pre-post-test. A reflexive thematic analysis was implemented for the qualitative data. Results: Following the workshop, participants reported feeling significantly more informed about dementia prevalence in Ghana ( Conclusion: There is a need to formalise and resource a community of practice, thus ensuring sustained collaboration, structured knowledge exchange, collective action across sectors, whilst piloting a caregiver support programme and home-care model with rigorous monitoring and evaluation. It is time for policymakers to enact a comprehensive dementia care policy to guide and regulate all stakeholders in the continuum of dementia care.
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