Evidence map›Paper›PMID 42027302›Full record

ArticleResearch and practice in thrombosis and haemostasis2026

Global survey of women's awareness of pregnancy- and postpartum-associated venous thromboembolism (World Thrombosis Day 2025).

Marcello Di Nisio, Isabelle Mahé, Parham Sadeghipour, John Suviraj, Anila Rashid, Ann Marie O'Neill, Beverley J Hunt, Sabrina Hadim, Fahimeh Ghotbizadeh, Ettore Porreca and 25 more

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Article in Research and practice in thrombosis and haemostasis, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

35 authors.

Marcello Di NisioDepartment of Medicine and Ageing Sciences, University G. D'Annunzio Chieti-Pescara, Chieti, Italy.
Isabelle MahéUniversité Paris Cité, Internal Medicine Department, Assistance Publique des Hôpitaux de Paris, Louis Mourier, Hospital, Inserm UMR-S970 Paris, Cardiovascular Research Center, Team Endotheliopathy and Hemostasis Disorders, Paris, France.
Parham SadeghipourVascular Disease and Thrombosis Research Center, Rajaie Cardiovascular Institute, Tehran, Iran.
John SuvirajVenous Thrombo Embolism Prevention & Control Committee, Sir Ganga Ram Hospital, New Delhi, India.
Anila RashidKing's Mill Hospital, Sherwood Forest NHS Foundation Trust, Sutton-in-Ashfield, United Kingdom.
Ann Marie O'NeillThrombosis Ireland, Dublin, Ireland.
Beverley J HuntGuy's and St Thomas' NHS Foundation Trust, London, United Kingdom.
Sabrina HadimUniversité Paris Cité, Internal Medicine Department, Assistance Publique des Hôpitaux de Paris, Louis Mourier, Hospital, Inserm UMR-S970 Paris, Cardiovascular Research Center, Team Endotheliopathy and Hemostasis Disorders, Paris, France.
Fahimeh GhotbizadehImam Khomeini Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Ettore PorrecaDepartment of Innovative Technologies in Medicine and Dentistry, School of Medicine and Health Sciences, University G. D'Annunzio Chieti-Pescara, Chieti, Italy.
Helen OkoyeDepartment of Haematology and Immunology, College of Medicine, University of Nigeria Ituku-Ozalla, Enugu, Nigeria.
Marco LiberatiObstetrics-Gynecology Clinic, SS. Annunziata Hospital, University G. D'Annunzio Chieti-Pescara, Chieti, Italy.
Jaromir GumulecDepartment of Hematooncology, University Hospital Ostrava, Ostrava, Czech Republic.
Saskia MiddeldorpDepartment of Internal Medicine, Radboud University Medical Center, Nijmegen, The Netherlands.
Cihan AyDivision of Haematology and Haemostaseology, Department of Medicine I, Comprehensive Cancer Center Vienna, Medical University of Vienna, Vienna, Austria.
Cedric HermansHemostasis and Thrombosis Unit, Division of Hematology, Saint-Luc University Hospital, Université catholique de Louvain, Brussels, Belgium.
Manuel MonrealFaculty of Health Sciences, Universidad Católica San Antonio de Murcia, Murcia, Spain.
Patricia CasaisPublic Health Research Institute, University of Buenos Aires and Bernardino Rivadavia General Hospital, Buenos Aires, Argentina.
Nicola PotereDepartment of Medicine and Ageing Sciences, University G. D'Annunzio Chieti-Pescara, Chieti, Italy.
Matteo CandeloroDepartment of Innovative Technologies in Medicine and Dentistry, School of Medicine and Health Sciences, University G. D'Annunzio Chieti-Pescara, Chieti, Italy.
Lana A CastellucciDepartment of Medicine, Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
Jean M ConnorsHematology Division, Dana Farber Cancer Institute, Brigham and Women's Hospital, Boston, Massachusetts, USA.
Aaron M WendelboeDepartment of Epidemiology, Fay Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas, USA.
Danny HsuHaematology Department, Liverpool Hospital, Liverpool, Sydney, New South Wales, Australia.
Lai Heng LeeDepartment of Hematology, Singapore General Hospital, Singapore.
Soo-Mee BangDivision of Hematology and Medical Oncology, Department of Internal Medicine, Seoul National University Bundang Hospital, Seoul National University College of Medicine, Seongnam, Republic of Korea.
Eriko MorishitaDivision of Health Sciences, Department of Clinical Laboratory Science, Graduate School of Medical Science, Kanazawa University, Kanazawa, Ishikawa, Japan.
Pantep AngchaisuksiriDivision of Hematology, Department of Medicine, Ramathibodi Hospital, Mahidol University, Bangkok, Thailand.
Daniel DuerschmiedDepartment of Cardiology, Haemostaseology, and Medical Intensive Care, Medical Faculty Mannheim, University Medical Centre Mannheim, German Centre for Cardiovascular Research Partner Site Heidelberg/Mannheim, Heidelberg University, Mannheim, Germany.
Benedetta MadaroInternal Medicine Residency Program, School of Medicine, University of Insubria, Varese and Como, Italy.
Leonie RimannDepartment of Vascular Medicine, University Hospital Zurich, Zurich, Switzerland.
Cary R ClarkPrograms and Education, International Society on Thrombosis and Haemostasis, Carrboro, North Carolina, USA.
Clarence PotterPrograms and Education, International Society on Thrombosis and Haemostasis, Carrboro, North Carolina, USA.
Erich Vinicius De PaulaUniversity of Campinas School of Medicine, University of Campinas, Campinas, São Paulo, Brazil.
Stefano BarcoDepartment of Vascular Medicine, University Hospital Zurich, Zurich, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Venous thromboembolism (VTE) is a leading cause of maternal morbidity and mortality, yet women's awareness during pregnancy and postpartum is not well characterized. Objectives: To assess education and awareness of pregnancy-associated VTE across countries and healthcare systems, including sources of information, perceived understanding, and experiences with anticoagulation. Methods: We conducted a cross-sectional online survey (15 languages), endorsed by the World Thrombosis Day campaign, of females who were pregnant or ≤12 months postpartum (October 2024 and September 2025). Descriptive analyses and subgroup comparisons were performed. Results: Of 3043 responses, 3025 were analyzed. Overall, 69.8% reported no VTE education during pregnancy or the postpartum period, and 1.1% received education only at diagnosis, resulting in 70.9% with no or delayed VTE education. Upon delivery, comprehension was limited, with 36.2%, 46.8%, and 9.2% of females reporting full, partial, and poor understanding, respectively. Only 10.9% of females received instructions on VTE manifestations; among these, 16.3% were not advised to seek urgent care for suspected VTE events. Knowledge of pulmonary embolism-related signs was particularly poor. Prior VTE was reported in 13.3%, and 21.4% had ever used anticoagulants. Among participants who had discussed thromboprophylaxis and/or received anticoagulants, 32.4% were unaware of bleeding risks. Approximately 20% of those informed reported psychological distress related to VTE information. Education rates differed by age, education level, ethnicity, region, and reproductive factors. Conclusion: VTE education during pregnancy and postpartum is infrequent and unevenly distributed. Enhanced educational interventions embedded within antenatal and postnatal care pathways are urgently needed to improve VTE awareness, symptom recognition, and informed decision-making.

Indexed as

Health Knowledge, Attitudes, PracticePregnancy Complications, CardiovascularVenous ThromboembolismAdultAnticoagulantsAwarenessCross-Sectional StudiesFemaleHumansPatient Education as TopicPostpartum PeriodPregnancyRisk FactorsSurveys and QuestionnairesYoung AdultAnticoagulantsawarenesseducationpostpartum periodpregnancyvenous thromboembolism

Identifiers

PMID42027302
PMCPMC13099470

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.