Evidence map›Paper›PMID 42020407›Full record

ArticleNPJ primary care respiratory medicine2026

Co-designing a primary care delivered, breathlessness, self-management intervention for people with chronic respiratory disease.

Natasha Smallwood, Amy Pascoe, Lena Ly, Anna Spathis, Sarah Hoare, Lindsey Berends, Jonathan Mant, Jennifer Philip, Rebecca Disler, Anne E Holland and 3 more

Abstract read
In one paragraph

Article in NPJ primary care respiratory medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Natasha SmallwoodRespiratory Research @ The Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia. natasha.smallwood@monash.edu.
Amy PascoeRespiratory Research @ The Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia.
Lena LyRespiratory Research @ The Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia.
Anna SpathisDepartment of Public Health & Primary Care, University of Cambridge, Cambridge, UK.
Sarah HoareDepartment of Public Health & Primary Care, University of Cambridge, Cambridge, UK.
Lindsey BerendsDepartment of Public Health & Primary Care, University of Cambridge, Cambridge, UK.
Jonathan MantDepartment of Public Health & Primary Care, University of Cambridge, Cambridge, UK.
Jennifer PhilipDepartment of Medicine, University of Melbourne, Melbourne, VIC, Australia.
Rebecca DislerRespiratory Research @ The Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia.
Anne E HollandRespiratory Research @ The Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia.
Yet KhorRespiratory Research @ The Alfred, School of Translational Medicine, Monash University, Melbourne, VIC, Australia.
Christian OsadnikDepartment of Physiotherapy, Monash University, Melbourne, VIC, Australia.
Lena SanciDepartment of General Practice and Primary Care, Faculty of Medicine, Dentistry & Health Sciences, University of Melbourne, Parkville, VIC, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Chronic breathlessness is a highly prevalent, distressing symptom among people with chronic respiratory disease (CRD), often persisting despite optimal treatment. Primary care clinicians are well-positioned to offer early access to self-management support, however, many report limited knowledge, resources and confidence in managing breathlessness. The PrimaryBreathe Australia clinical trial is an ongoing partnership with PrimaryBreathe UK. In partnership with people with CRD, primary healthcare workers (HCWs), and additional stakeholders, we aimed to co-design a technology-supported, evidence-based, breathlessness self-management intervention, to be delivered to Australians with CRD enrolled in the PrimaryBreathe Australia clinical trial. Using a cyclical co-design approach, we conducted two rounds of semi-structured interviews and a consensus-building focus group to design/develop a feasible and acceptable intervention ahead of trial implementation. Data were transcribed and analysed according to the Theoretical Domains Framework. A total of 39 participants contributed to the co-design process, including 17 patients, 20 HCWs, and 2 stakeholders. Key overarching themes included: patient engagement in care; primary HCWs' approach to management; and healthcare structures, and the impacts of these domains on access to healthcare and breathlessness management. Tailored implementation strategies to address the concerns raised included: clinician-supported, self-management education for patients; flexible, multimodal, intervention delivery; and continuity of care within familiar settings. Our newly co-designed, evidence-based, breathlessness, self-management intervention was collaboratively developed with HCWs, people living with CRD, and additional stakeholders. This participatory approach ensures the intervention is patient-focused, contextually relevant, and fit for purpose when deployed in the PrimaryBreathe Australia clinical trial from 2025.

Indexed as

DyspneaPrimary Health CarePulmonary Disease, Chronic ObstructiveSelf-ManagementAustraliaChronic DiseaseFemaleFocus GroupsHumansMaleMiddle Aged

Identifiers

PMID42020407
PMCPMC13315910

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.