Shared Decision-Making for Children with Medical Complexity and Their Caregivers in the Perioperative Time.

Jody L Lin, Katherine Gentry, Kimberly A Kaphingst, Nancy Murphy

Abstract readReview

In one paragraph

Review in Pediatric clinics of North America, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it

0cells of the map it votes in

0citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jody L LinDivision of Hospital Medicine, Department of Pediatrics, Spencer Fox Eccles School of Medicine, University of Utah, Salt Lake City, UT, USA. Electronic address: jody.lin@hsc.utah.edu.

Katherine GentryDivision of Pediatric Anesthesia, Department of Anesthesiology and Pain Medicine, University of Washington School of Medicine, Seattle, Treuman Katz Center for Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA.

Kimberly A KaphingstDepartment of Communication and Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.

Nancy MurphyDivision of Complex Care, Department of Pediatrics, Spencer Fox Eccles School of Medicine, University of Utah, 81 N Mario Capecchi Drive, Salt Lake City, UT 84113, USA.

Funding

Developing an Innovative Decision Support Tool for Pediatric Neuromuscular ScoliosisK23AR079778 · NIAMS · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI Jody Lin · 2022 to 2026

$942k

NIAMS NIH HHS K23 AR079778

6 · The paper itself

Abstract

Many decisions faced by children with medical complexity during the perioperative period do not have a clear best treatment option and thus must balance the clinician's knowledge and the families' treatment preferences and values. Shared decision-making is a communication process through which providers and families can make high-quality collaborative decisions that consider the child's best interests. The objective of this article is to define the core elements of shared decision-making, discuss aspects of shared decision-making unique to children with medical complexity, and describe practical approaches to integrating these elements into clinical practice.

Indexed as

CaregiversDecision Making, SharedPerioperative CareChildDecision MakingHumansProfessional-Family RelationsBioethicsChildren with medical complexityChildren with special health care needsHealth literacyPalliative careShared decision-making

Identifiers

PMID42020034

DOI10.1016/j.pcl.2025.11.001

PMCPMC13249405

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.