ReviewJournal of cancer survivorship : research and practice2026
Longitudinal quality of life measurement in colorectal cancer survivorship: a scoping review of patient-reported outcome measures (PROMs).
Review in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
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Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis study aimed to identify the Patient-Reported Outcome Measures (PROMs) used to assess health-related quality of life (HRQoL) in colorectal cancer (CRC) survivors over time, examining the specific HRQoL domains assessed by PROMs, and exploring PROM use across interventions, age groups, settings, and survivorship phases.
methodsPubMed, Embase, CINAHL, and PsycINFO were systematically searched for studies published between January 2005 and March 2025. Eligible studies focused on survivors with local or locally advanced CRC, where HRQoL was assessed at least at two timepoints (< 2 years and 5 + years post-diagnosis) using either a comprehensive PROM or two or more PROMs covering different domains and reported outcomes. Studies were screened independently by two reviewers.
resultsThe review included 21 articles representing 15 unique studies. Disease-specific PROMs predominated, commonly supplemented with generic instruments. Measurement timing and domain coverage varied widely. Physical health and symptom domains such as bowel function, fatigue, and pain were consistently assessed, whereas psychosocial constructs such as fear of cancer recurrence, financial strain, and social reintegration were less frequently captured. Temporal mapping of PROMs revealed strong emphasis on acute recovery within 2 years and limited long-term monitoring beyond 5 years.
conclusionsPROM use in CRC survivorship research remains fragmented. Harmonisation of measures, survivor involvement in PROM development, and longitudinal implementation are essential next steps to generate comparable, patient-centred, and policy-relevant evidence that supports long-term survivorship care. SCOPING REVIEW REGISTRATION: This protocol has been registered prospectively with the Open Science Framework (OSF) https://osf.io/a9rf7 . IMPLICATIONS FOR CANCER SURVIVORS: More consistent and long-term use of PROMs in follow-up care can help identify late treatment effects and under-recognised survivorship issues.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.