ArticleJournal of pediatric rehabilitation medicine2026
Rehabilitation approaches used for children with spinal muscular atrophy: A scoping review based on the F-words framework.
Article in Journal of pediatric rehabilitation medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
3 authors.
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Abstract
AimWith medical advances, children with spinal muscular atrophy (SMA) now survive. Literature reporting on SMA rehabilitation approaches before and after disease-modifying treatments has not been reviewed.MethodFive databases and grey literature were systematically searched for pediatric reports with a SMA rehabilitation focus, published between 2000-2024. Two independent reviewers screened titles and abstracts; a third reviewer resolved disagreements. Rehabilitation interventions and outcomes were extracted and coded using the International Classification of Function (ICF) Category Tool and analysed using the 'F-words for Childhood Disability' as an interpretive framework.ResultsWith duplicates removed, 2621 reports were screened, 268 reviewed and 71 retained for detailed extraction. Authors described interventions directed at impairment (50%), functioning (15%), participation (8%), and environmental (27%) domains. Rehabilitation outcomes focused on impairment (42%), functioning (43%), participation (9%), and quality of life (6%) outcomes.InterpretationThere is a trend in SMA rehabilitation to address impairments with hopes of translation to functional gains. Recommendations include applying the F-words framework, using individual goal-directed multi-disciplinary approaches, and considering the voices of children and families to broaden and re-imagine SMA rehabilitation.Protocol RegistryOpen Science Framework (https://osf.io/w47m8/).
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