Evidence map›Paper›PMID 42016768›Full record

ArticleNursing research and practice2026

Relatives' Involvement in the Care Pathway of Patients With Acquired Brain Injury or Malignant Brain Tumour: An Observational Study.

Rikke Guldager, Emilie Gyldenöhr, Ingrid Poulsen, Lena Aadal, Sara Nordentoft, Mia Ingerslev Loft

2 registry-linked trialsAbstract read
In one paragraph

Article in Nursing research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06796335 completednot on this map

Development and Implementation of an Intervention Enhancing Involvement of Relatives to Patients With Acquired Brain Injury or Malignant Brain Tumour

TypeobservationalSponsorRigshospitalet, DenmarkRan2024 to 2025Enrolled35ConditionsBrain Injury, Brain Tumor Adult, Traumatic Brain Injury, GlioblastomaArmsRIGht
NCT07590726 nanot yet recruitingnot on this map

PIRe 2.0: A Stepped-Care Model for Involving Relatives Across Sectors

TypeinterventionalSponsorRigshospitalet, DenmarkRan2026 to 2029Enrolled160ConditionsBrain Injuries, Acute, Brain Tumor Adult, Brain (Nervous System) Cancers, Traumatic Brain InjuriesArmsSupportive Care
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Rikke GuldagerDepartment of Neurosurgery, The Neuroscience Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID https://orcid.org/0000-0003-1491-2556
Emilie GyldenöhrDepartment of Neurosurgery, The Neuroscience Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
Ingrid PoulsenDepartment of People and Technology, Roskilde University, Roskilde, Denmark, ruc.dk.ORCID https://orcid.org/0000-0002-0342-017X
Lena AadalHammel Neurorehabilitation and Research Centre, Hammel, Denmark.ORCID https://orcid.org/0000-0001-7365-3916
Sara NordentoftDepartment of Neurosurgery, The Neuroscience Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID https://orcid.org/0000-0001-5600-2644
Mia Ingerslev LoftDepartment of Neurology, The Neuroscience Centre, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.ORCID https://orcid.org/0000-0002-0009-3302

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Aim: To explore how nurses involve the relatives of patients with acquired brain injury or malignant brain tumour and how this involvement unfolds in hospital ward settings. We focus on the contextual, interpersonal, and communicative dynamics that shape and mediate involvement. Design: A qualitative, exploratory design using nonparticipant field observation. Methods: Nineteen nonparticipant observations were conducted across seven units in four Danish hospital sites, covering the full clinical pathway from acute care to inpatient rehabilitation. Data were analysed using inductive content analysis following Graneheim and Lundman approach. Results: The analysis identified one overarching theme and three categories that illuminate how relative involvement is shaped in clinical practice. Relatives' opportunities to be involved in the patient's treatment and care were strongly influenced by the physical and organizational context, including the spatial layout of wards and the timing of clinical routines. Communicative practices ranged from one-way information delivery to inclusive dialogues, affecting whether relatives were acknowledged and involved. The way nurses recognized relatives relationally, either as passive bystanders or as knowledgeable contributors, further shaped their role. Across all categories, a continuum of involvement emerged, ranging from complete absence to active partnership, reflecting how structural and interpersonal factors interact to enable or hinder meaningful engagement. Conclusion: Relative involvement is not consistently embedded in everyday clinical routines but varies depending on context, professional practice, and communicative approach. Involvement often depends on relatives taking initiative and is rarely proactively facilitated by nurses. However, when nurses are able to create structured, inclusive environments, relatives shift from peripheral observers to valued partners in care. Impact: This study contributes important observational knowledge to the field of family involvement in acute and complex care settings. The findings highlight the need for structured, context-sensitive strategies that enable nurses to identify and support diverse forms of relative involvement. Such efforts are vital to ensure equitable engagement across different clinical settings and family constellations.

Indexed as

acquired brain injurycommunicationfamily-centred caremalignant brain tumourneurological nursingnonparticipant observationqualitative content analysisrelative involvement

Identifiers

PMID42016768
PMCPMC13092715

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.