Evidence map›Paper›PMID 42006736›Full record

ArticleIJTLD chronic respiratory disease2026

"Once you get TB, life changes": post-tuberculosis experiences and care needs in East Africa.

Kirsten Prabhudas-Strycker, Winnie Muyindike, Lameck Diero, Sylvia Kitur, Julia Omondi, Sarah Namwanje, Lillian Ayesiga, Bob Ssekyanzi, MaKayla Waugh, Suzanne Goodrich and 5 more

Abstract read
In one paragraph

Article in IJTLD chronic respiratory disease, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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0 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

15 authors.

Kirsten Prabhudas-StryckerThe Ryan White Center for Pediatric Infectious Disease and Global Health, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, United States.
Winnie MuyindikeMbarara University of Science and Technology, Mbarara, Uganda.
Lameck DieroDepartment of Medicine, Moi University College of Health Sciences, Eldoret, Kenya.
Sylvia KiturAcademic Model Providing Access to Healthcare (AMPATH), Eldoret, Kenya.
Julia OmondiAcademic Model Providing Access to Healthcare (AMPATH), Eldoret, Kenya.
Sarah NamwanjeMbarara Regional Referral Hospital, Mbarara, Uganda.
Lillian AyesigaMbarara Regional Referral Hospital, Mbarara, Uganda.
Bob SsekyanziMbarara Regional Referral Hospital, Mbarara, Uganda.
MaKayla WaughIndiana University Indianapolis, Indianapolis, Indiana, United States.
Suzanne GoodrichDivision of Infectious Diseases, Department of Medicine, Indiana University School of Medicine, Indianapolis, United States.
Helen ByakwagaMbarara University of Science and Technology, Mbarara, Uganda.
Aggrey SemeereResearch Department, Infectious Diseases Institute, Makerere University, Kampala, Uganda.
Kara Wools-KaloustianDivision of Infectious Diseases, Department of Medicine, Indiana University School of Medicine, Indianapolis, United States.
Neelima NavuluriDivision of Pulmonary, Allergy, and Critical Care Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Leslie A EnaneThe Ryan White Center for Pediatric Infectious Disease and Global Health, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, United States.

Funding

East Africa International Epidemiology Database to evaluate AIDS (IeDEA) Regional ConsortiumU01AI069911 · NIAID · INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS · PI AGGREY SEMWENDERO SEMEERE, Kara Kay Wools-Kaloustian · 2006 to 2026
$57.7M
Post-Tuberculosis Lung Disease in Youth with and without HIV GloballyR01AI184174 · NIAID · INDIANA UNIVERSITY INDIANAPOLIS · PI Leslie Anne Enane · 2025 to 2026
$2.1M
NIAID NIH HHS R01 AI184174NIAID NIH HHS U01 AI069911
6 · The paper itself

Abstract

Introduction: Recognition of tuberculosis (TB) sequelae is growing. Evidence regarding post-TB experiences and care needs may inform care models. Methods: The TB Sentinel Research Network of the International epidemiology Databases to Evaluate AIDS is a global prospective study of people aged ≥15 with pulmonary TB. In Eldoret, Kenya, and Mbarara, Uganda, we conducted in-depth interviews with a purposive sample of individuals treated for TB and multi-disciplinary healthcare workers (HCWs) providing TB care, using a semi-structured guide. We conducted a reflexive thematic analysis. Results: In interviews with 25 HCWs and 61 individuals treated for TB, participants described trajectories of TB illness and recovery, and some persistent challenges after TB treatment across physical, economic, social, and mental health domains of wellbeing. Experiences were marked by stigma and isolation. Physical illness exacerbated economic vulnerability, which compromised physical health and presented barriers to care. There was a lack of care access and need for person-centered post-TB care. Care needs included addressing potential TB recurrence, lung health impairment, psychosocial, nutritional, and economic challenges. Conclusions: Post-TB experiences are marked by persistent symptoms, economic vulnerability, stigma, and psychosocial challenges. These experiences are generally neglected in the current care paradigm, underscoring needs for accessible, person-centered post-TB care models.

Indexed as

health-related quality of lifepost-tuberculosis lung diseasequalitative researchsocioeconomic outcomes

Identifiers

PMID42006736
PMCPMC13091068

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.