ReviewJournal of applied research in intellectual disabilities : JARID2026
Exploring the Experiences of Caring for a Family Member With Intellectual Disabilities Displaying Behaviours That Challenge and/or Mental Health Difficulties Within the United Kingdom: A Meta-Ethnographic Review.
Review in Journal of applied research in intellectual disabilities : JARID, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThis review aims to synthesise qualitative literature of experiences of caregiving for family members with intellectual disabilities displaying behaviours that challenge and/or mental health difficulties, within the United Kingdom.
methodFollowing Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines, five electronic databases (APA PsychInfo, Web of Science, PubMed, MedLine and CINAHL) were systematically searched. Analysis followed a meta-ethnographic approach.
resultsFourteen studies were included. Three key themes and a line of argument were developed: (i) Carers Wear Many Hats; (ii) Square Services, Round Needs; (iii) A Journey of Many Lows and Some Highs.
conclusionsCarers highlighted psychosocial strains of the multi-faceted caregiving roles-including advocacy, education and protection. One-size-fits-all approaches meant support services were more burdensome than helpful, leaving carers feeling powerless and marginalised, with limited reports of good practice. The findings can inform care services about supporting these families and individuals with idiosyncratic and intersecting needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.