ArticleBMC palliative care2026
What are fathers' experiences of neonatal-perinatal palliative care? A Scoping review.
Article in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
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Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
Whilst there is a burgeoning body of research exploring parental experiences of neonatal-perinatal palliative care, a major limitation is fathers’ under-representation as research study participants. The paucity of literature relating to fathers’ experiences means there is scant evidence to guide those with a remit to support them. Understanding is needed on how fathers cope, accept loss, and grieve, and how notions of fatherhood and masculinity affect men’s experiences and support.This scoping review aims: (a) to provide an in-depth overview of the current state of knowledge around fathers’ experiences of neonatal palliative care; and (b) to understand the ways in which fathers have been engaged as participants in existing research. Seven electronic databases were searched for qualitative studies concerning fathers’ experiences of neonatal palliative care, complimented by manual searches and grey literature searches. A total of 22 studies met the inclusion criteria. Three main analytical themes were identified, arranged temporally following fathers’ experiences from the point of diagnosis to bereavement and beyond: (1) fathers’ experiences of finding out and decision making; (2) fathers experiences in and out of the care environment; and (3) fathers’ experiences of grief and bereavement.This scoping review finds that whilst the existing research provides a useful starting point for understanding fathers’ experiences of neonatal palliative care, there is a need for interdisciplinary research that explores fathers’ experiences in more depth, to inform and improve care and support available to fathers during this difficult time.
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Registered trials
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