Evidence map›Paper›PMID 41987260›Full record

ArticleResearch involvement and engagement2026

Development of the RIPPLES framework for patient and public involvement in rapid evidence syntheses.

Eugenie Evelynne Johnson, Sean Gill, Madeleine Still, Daisy Trenchard, Debbie Smith, Rebecca Harmston, Jane McDermott, Fiona Pearson

Abstract read
In one paragraph

Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Eugenie Evelynne JohnsonNIHR Innovation Observatory, Newcastle University, Newcastle upon Tyne, UK. eugenie.johnson@newcastle.ac.uk.
Sean GillNIHR Innovation Observatory, Newcastle University, Newcastle upon Tyne, UK.
Madeleine StillNIHR Innovation Observatory, Newcastle University, Newcastle upon Tyne, UK.
Daisy TrenchardNIHR Innovation Observatory, Newcastle University, Newcastle upon Tyne, UK.
Debbie SmithPublic Research Team Member, Newcastle upon Tyne, UK.
Rebecca HarmstonPublic Research Team Member, Newcastle upon Tyne, UK.
Jane McDermottNIHR Innovation Observatory, Newcastle University, Newcastle upon Tyne, UK.
Fiona PearsonNIHR Innovation Observatory, Newcastle University, Newcastle upon Tyne, UK.

Funding

National Institute for Health Research (NIHR) NIHRIO/project reference HSRIC-2016-10009
6 · The paper itself

Abstract

backgroundPatient and public involvement (PPI) is an expectation and requirement of health and social care research within the United Kingdom. Although there is available guidance on how to practice PPI, to date there have been no frameworks or resources available specifically for PPI in rapid evidence syntheses, where work can be completed in as little as two or three weeks. Our objective was to design a framework to support those doing rapid evidence syntheses to include PPI in their work.

methodsWe developed the framework across three stages. First, we undertook a scoping review of published PPI frameworks in health and social care (N = 53) and a survey of key interest-holders (N = 101). The results of these alongside an online workshop with 15 interest-holders (researchers, members of the public, policymakers, PPI professionals) in November 2024 informed the initial development of the framework. We evaluated the draft framework at a second online workshop with 16 interest-holders in January 2025. We analysed the findings from this second workshop to further refine the framework.

resultsThe Rapid Involvement of Patients and the PubLic in Evidence Synthesis (RIPPLES) framework guides PPI in rapid evidence syntheses through three interconnected layers: core guiding principles of the UK Standards for Public Involvement at the centre; building continued approaches to patient, public and community engagement; and steps for embedding PPI into individual rapid evidence synthesis projects. An accompanying guidance document and worksheet to plan PPI activities were also developed to aid researchers in using the framework.

conclusionsRIPPLES is the first framework to provide practical and pragmatic guidance on how to embed PPI within rapid evidence synthesis. The framework will undergo evaluation and refinement, including development of public-facing materials and case studies to supplement current resources.

Indexed as

Evidence synthesisFrameworkPatient engagementPatient involvementPublic involvement and engagementRapid evidence synthesis

Identifiers

PMID41987260
PMCPMC13192043

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.