Evidence map›Paper›PMID 41987115›Full record

ArticleBMC palliative care2026

Family perceptions of palliative care consultations for nursing home residents.

Alfred Boakye, John Cagle, Gretchen Tucker, Mary Ersek, Alexander C Floyd, Hanley Elftmann, Peiyuan Zhang, Kathleen T Unroe

Registry-linked trialAbstract read
In one paragraph

Article in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04520698 (Utilizing Palliative Leaders In Facilities to Transform Care for Alzheimer's Disease), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04520698 nacompletednot on this map

Utilizing Palliative Leaders In Facilities to Transform Care for Alzheimer's Disease

TypeinterventionalSponsorIndiana UniversityRan2021 to 2025Enrolled1,322ConditionsAlzheimer DiseaseArmsUPLIFT-AD
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Alfred BoakyeDivision of Gerontology, University of Maryland, Baltimore, Baltimore, USA. alfred.boakye@som.umaryland.edu.
John CagleSchool of Social Work, University of Maryland, Baltimore, Baltimore, USA.
Gretchen TuckerDepartment of Physical Therapy and Rehabilitation Science, University of Maryland, Baltimore, USA.
Mary ErsekSchool of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
Alexander C FloydSchool of Medicine; Regenstrief Institute, Inc., Indiana University, Indianapolis, IN, USA.
Hanley ElftmannSchool of Osteopathic Medicine, A.T. Still University, Mesa, USA.
Peiyuan ZhangSchool of Social Work, University of Alabama, Tuscaloosa, USA.
Kathleen T UnroeSchool of Medicine; Regenstrief Institute, Inc., Indiana University, Indianapolis, IN, USA.

Funding

UPLIFT-AD (Utilizing Palliative Leaders in Facilities to Transform care for Alzheimer's Disease) interventionR01AG066922 · NIA · INDIANA UNIVERSITY INDIANAPOLIS · PI CAGLE, JOHN GARLAND, UNROE, KATHLEEN T · 2020 to 2024
$3.5M
NIA NIH HHS R01 AG066922
6 · The paper itself

Abstract

objectivesPalliative care (PC) consultations, often facilitated by providers external to nursing homes (NHs), can reduce unwanted hospitalizations and improve decision-making and communication for nursing home (NH) residents. However, limited literature has documented the specific elements within PC consultations that drive positive outcomes. Given the critical role of family members, especially for residents with cognitive impairment, this study aimed to: (1) identify actions and interactions during recent PC consultation visits, and (2) summarize family perceptions of these visits.

methodsUsing a descriptive qualitative research design, family caregivers (N = 22) from five NHs across two states (Indiana and Maryland) were recruited to be interviewed within approximately one month of a PC consultation. These family caregivers had participated in a clinical trial of PC. Semi-structured interviews were transcribed, analyzed using thematic content analysis and finalized for discussions.

resultsMost family caregivers were adult children (59.1%), were female (81.9%), and Black (54.6%). Four interaction themes emerged regarding PC consultations interactions: they (1) promoted physical comfort, (2) supported family members, (3) attended to residents’ social needs, and (4) provided next steps/care planning. Four themes on perceived benefits of consultation visits were identified. Visits (1) improved residents’ quality of life, (2) provided recommendations/referrals, (3) kept family members informed, and (4) supported family members. DISCUSSION: Family caregivers had favorable impressions of PC consultation visits and provided insights into specific interactions during visits. Garnering the perspectives of family caregivers involved in PC consultations is vital for designing interventions that better support residents with cognitive impairment and their families. Findings reinforce the importance of expanding access to PC consultations in NHs that prioritize family involvement.

trial registrationThe UPLIFT project was registered on ClinicalTrials.gov NCT04520698 on 8/17/2020.

Indexed as

FamilyPalliative CarePerceptionReferral and ConsultationAdultAgedAged, 80 and overCaregiversFemaleHumansMaleMarylandMiddle AgedNursing Home ResidentsNursing HomesQualitative ResearchFamily caregiversNursing home residentsQualitative researchQuality of care

Identifiers

PMID41987115
PMCPMC13196179

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.