Evidence map›Paper›PMID 41986694›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026

Patients' symptoms and challenges during the first year after allogeneic haematopoietic cell transplantation-patients' own expressions.

Carina Lundh Hagelin, Annika M Kisch, Katarina Holmberg, Anna O'Sullivan, Yvonne Wengström, Jeanette Winterling, Karin Bergkvist

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Carina Lundh HagelinDepartment of Health Care Sciences, Marie Cederschiöld University, P.O 11189, SE-100 61, Stockholm, Sweden. Carina.lundh-hagelin@mchs.se.ORCID http://orcid.org/0000-0002-0197-9121
Annika M KischDepartment of Hematology, Oncology and Radiation Physics, Skane University Hospital, SE-221 85, Lund, Sweden.ORCID http://orcid.org/0000-0002-1536-3926
Katarina HolmbergDepartment of Nursing Care, Sophiahemmet University, SE 114 86, Stockholm, Sweden.ORCID http://orcid.org/0000-0002-3672-7055
Anna O'SullivanDepartment of Health Care Sciences, Marie Cederschiöld University, P.O 11189, SE-100 61, Stockholm, Sweden.ORCID http://orcid.org/0000-0002-4136-7250
Yvonne WengströmDepartment of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden.ORCID http://orcid.org/0000-0001-8317-7829
Jeanette WinterlingDepartment of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden.ORCID http://orcid.org/0000-0003-4165-9015
Karin BergkvistDepartment of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.ORCID http://orcid.org/0000-0002-6331-8599

Funding

Sjöbergstiftelsen 2021-01-14:7The Blood Cancer Foundation, Sweden 2017-01-16 and 18-12-22
6 · The paper itself

Abstract

purposeThe study aimed to describe patients' experiences of physical, psychological, social, and existential symptoms and challenges during the first year after allogeneic haematopoietic cell transplantation (allo-HCT).

methodsQuantitative and qualitative data were collected and analysed with descriptive methods as part of a large retrospective cross-sectional online survey of patients who underwent allo-HCT between 2017 and 2020.

resultsIn total, 126 (59.7%) of all eligible patients participated, mean age 57 years (range 21-75), equal distribution of gender and time after allo-HCT. Most patients (58%) had experienced fewer than 5 coexisting symptoms, although 8% reported more than 10. Physical symptoms or challenges (83.0%) were most often reported, followed by social (52%), existential (50%), and psychological (43%), as described in responses to open-ended questions. Analysed descriptions resulted in 12 categories/areas of physical symptoms and challenges; two categories each of psychological-My inner self and Me in my context; social-Social isolation and Impact on relationships; and existential symptoms and challenges-Re-evaluating life and myself and An uncertain future.

conclusionPatients experienced a variety of symptoms and challenges as a multidimensional experience during the first year after allo-HCT. A holistic approach to symptoms and challenges is needed to address individual patients' situations. This knowledge emphasises the importance of patients receiving supportive care to navigate life after transplantation and into survivorship.

Indexed as

Hematopoietic Stem Cell TransplantationAdultAgedCross-Sectional StudiesFemaleHumansMaleMiddle AgedQuality of LifeRetrospective StudiesSocial IsolationSurveys and QuestionnairesSymptom BurdenTime FactorsTransplantation, HomologousYoung AdultAllogeneic haematopoietic cell transplantationCancerCancer survivorshipMultidimensional challengeSymptom experiencesSymptom occurrence

Identifiers

PMID41986694
PMCPMC13083397

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.