Evidence map›Paper›PMID 41982484›Full record

ArticleAlzheimer's & dementia (Amsterdam, Netherlands)

The Progressive Aphasia Communication Toolkit (PACT): a strengths-based approach to multidomain evaluation for intervention.

Jeanne Gallée, Jade Cartwright, Maya L Henry, Aimee R Mooney, Brielle C Stark, Anna Volkmer, Aimee Dietz, Connie Nakano, Petronilla Battista, Ashleigh Beales and 27 more

Abstract read
In one paragraph

Article in Alzheimer's & dementia (Amsterdam, Netherlands). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

37 authors.

Jeanne GalléeDepartment of Medicine University of Washington Seattle Washington USA.ORCID https://orcid.org/0000-0002-9338-2727
Jade CartwrightSchool of Health Sciences University of Tasmania Hobart Australia.
Maya L HenryDepartment of Speech, Language, and Hearing Sciences University of Texas-Austin Austin Texas USA.
Aimee R MooneyDepartment of Neurology Oregon Health & Science University Portland Oregon USA.
Brielle C StarkDepartment of Speech, Language, and Hearing Sciences Indiana University Bloomington Indiana USA.
Anna VolkmerDivision of Psychology and Language Sciences University College London London UK.
Aimee DietzDepartment of Communication Sciences and Disorders University of South Florida Tampa Florida USA.
Connie NakanoDepartment of Medicine University of Washington Seattle Washington USA.
Petronilla BattistaIstituti Clinici Scientifici Maugeri IRCCS Laboratory of Neuropsychology Institute of Bari Bari Italy.
Ashleigh BealesSpeech Rehab Centre Perth Australia.
Bárbara Costa BeberDepartment of Speech Language and Hearing Sciences Universidade Federal de Ciências da Saúde de Porto Alegre (UFCSPA) Porto Alegre Rio Grande do Sul Brazil.
Inês CadórioRISE-Health Escola Superior de Saúde Fernando Pessoa Fundação Ensino e Cultura Fernando Pessoa Porto Portugal.
Megan CaldwellDepartment of Speech and Hearing Sciences University of Washington Seattle Washington USA.
Katharine DaviesSchool of Audiology and Speech Sciences The University of British Columbia Vancouver Canada.
Zoe EzzesSchool of Speech, Language, and Hearing Sciences San Diego State University San Diego California USA.
Mirjam GauchDepartment of Psychiatry and Psychotherapy University Medical Center of the Johannes Gutenberg University Mainz Mainz Germany.
Tracey GraneyTracey Graney Speech Pathology Hobart Tasmania Australia.
Simon GroblerNational Hospital for Neurology and Neurosurgery London UK.
Katarina L HaleyDivision of Speech and Hearing Sciences Department of Health Sciences School of Medicine University of North Carolina Chapel Hill North Carolina USA.
Alessa HausmannDepartment of Psychology University of Geneva Geneva Switzerland.
Elena HerreraDepartment of Psychology University of Oviedo Oviedo Spain.
Honey I HubbardDepartment of Speech and Hearing Sciences University of New Mexico Albuquerque New Mexico USA.
Regina JokelRotman Research Institute Baycrest Academy for Research and Education Toronto Canada.
Leslie KotDepartment of Speech and Hearing Sciences University of Washington Seattle Washington USA.
Mara Steinberg LoweDepartment of Linguistics and Communication Disorders CUNY Queens College New York New York USA.
Ellen McGowanPennine Care NHS Foundation Trust Manchester UK.
Lotte MeteyardClinical Language Sciences University of Reading Reading UK.
Núria MontagutAlzheimer's Disease and other Cognitive Disorders Unit. Hospital Clínic de Barcelona Barcelona Spain.
Iris NowensteinDepartment of Icelandic University of Iceland Reykjavík Iceland.
Margaret PozzebonAge Right Speech Pathology Melbourne Australia.
Richard TalbotDivision of Psychology and Language Sciences University College London London UK.
Cathy Taylor-RubinTaylor-Rubin Speech Language Pathology Sydney Australia.
Ffion WalkerHealthAbility Melbourne Australia.
Ingvild Elisabeth WinsnesDepartment of Linguistics and Scandinavian Studies University of Oslo Oslo Norway.
Rob J FredericksenDepartment of Allergy and Infectious Diseases University of Washington Seattle Washington USA.
Kimiko Domoto-ReillyAlzheimer's Disease Research Center University of Washington Seattle Washington USA.
Paul K CraneDepartment of Medicine University of Washington Seattle Washington USA.

Funding

MVP Data Integration into the ADSP Phenotype Harmonization ConsortiumU24AG074855 · NIA · VANDERBILT UNIVERSITY MEDICAL CENTER · PI CUCCARO, MICHAEL L, HOHMAN, TIMOTHY J · 2021 to 2025
$37.5M
University of Washington Alzheimer's Disease Research CenterP30AG066509 · NIA · UNIVERSITY OF WASHINGTON · PI Thomas J. Grabowski · 2020 to 2026
$29.0M
NIA NIH HHS P30 AG066509NIA NIH HHS U24 AG074855
6 · The paper itself

Abstract

introductionAssessments of communication for people living with primary progressive aphasia (PwPPA) remain limited. This work describes the development of a strengths-based, ecologically valid instrument - the Progressive Aphasia Communication Toolkit (PACT).

methodsThis work consisted of five experiments: two to develop (Experiments 1 and 2) and three to pilot (Experiments 3 to 5) a novel instrument for PPA. Ninety-five individuals worldwide contributed to this work: 80 researchers and clinicians, nine PwPPA, and six care partners.

resultsExperiments 1 and 2 yielded a four-scale instrument comprising quantitative and qualitative feedback. Experiments 3 to 5 resulted in structural refinement and digitization of the tool, revealed strong PwPPA and care partner acceptance of the PACT, and demonstrated high inter-rater agreement for general observability (91%) and perceived communication strength (85%). DISCUSSION: Current findings indicate that the PACT provides a holistic profile of communication strengths for PwPPA and can guide clinicians in developing functional therapeutic targets. Highlights: Instruments to evaluate communicative competence in PwPPA are centered on diagnosis and impairment.Documentation of communication strengths has direct implications for person-centered care and behavioral intervention.The PACT was developed in partnership with expert clinicians, researchers, PwPPA, and care partners.The PACT captures functional, real-world communication ability through a structured conversation and provides a shared framework to describe communicative competence across disciplines.Preliminary findings support that the PACT is ecologically valid, minimally burdensome, preferred by PwPPA and care partners, and clinically feasible for clinicians and researchers.Future work will serve to develop cultural-linguistic adaptations of the PACT and investigate the instrument's validity, reliability, and feasibility as an assessment procedure for PwPPA in a larger sample.

Indexed as

person‐centered careprimary progressive aphasiaspeech‐language pathologystrengths‐based approachtherapeutic assessment

Identifiers

PMID41982484
PMCPMC13071354

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.