Evidence map›Paper›PMID 41976833›Full record

ArticleJournal of clinical medicine2026

Integrating Clinical, Functional, and Patient-Reported Outcomes in Haemophilia Care: A Delphi-Based Consensus on a New Monitoring Tool.

Angelo Claudio Molinari, Erminia Baldacci, Giovanni Barillari, Antonella Coluccia, Antonio Coppola, Anna Chiara Giuffrida, Gaetano Giuffrida, Chiara Gorio, Silvia Linari, Matteo Luciani and 9 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of clinical medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Angelo Claudio MolinariThrombosis and Hemostasis Unit, IRCCS Istituto Giannina Gaslini, 16147 Genova, Italy.ORCID 0000-0002-8078-8402
Erminia BaldacciHaematology, Department of Translational and Precision Medicine, "Sapienza" University, 00185 Rome, Italy.
Giovanni BarillariCenter for Hemorrhagic and Thrombotic Diseases, General and University Hospital S. Maria della Misericordia, 33100 Udine, Italy.ORCID 0000-0002-0706-8839
Antonella ColucciaU.O.C di Medicina Interna, Centro Emofilia e Coagulopatie Rare-Ospedale "I.Veris delli Ponti", Scorrano-ASL, 73010 Lecce, Italy.
Antonio CoppolaRegional Hub Center for Hemophilia and Congenital Bleeding Disorders, University Hospital of Parma, 43126 Parma, Italy.ORCID 0000-0003-3697-706X
Anna Chiara GiuffridaU.O.C Medicina Trasfusionale, Azienda Ospedaliera Universitaria Integrata, 37126 Verona, Italy.ORCID 0000-0002-1297-7308
Gaetano GiuffridaU.O.C di Ematologia, A.O.U. Policlinico "Vittorio Emanuele", 95123 Catania, Italy.ORCID 0000-0003-4947-3338
Chiara GorioPediatric Onco-Hematology Unit, Children's Hospital, ASST-Spedali Civili, 25123 Brescia, Italy.
Silvia LinariCenter for Bleeding Disorders and Coagulation, Department of Heart, Lung and Vessels, Careggi University Hospital, 50134 Florence, Italy.ORCID 0000-0002-5849-7377
Matteo LucianiHemostasis and Thrombosis Center, Onco-Hematology Department, Bambino Gesù Children's Hospital, 00165 Rome, Italy.
Alessandro CatiniAnalisi Statistiche.it, 00149 Rome, Italy.
Ilaria NicheleCentro Malattie Emorragiche e Trombotiche, UOC Ematologia, 36100 Vicenza, Italy.
Flora PeyvandiFondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, 20122 Milan, Italy.ORCID 0000-0001-7423-9864
Berardino PollioSIMT Immunohematology and Transfusion Medicine Service, Diagnostic Department, A.O. Città della Salute e della Scienza, 10126 Turin, Italy.
Annarita TagliaferriRegional Hub Center for Hemophilia and Congenital Bleeding Disorders, University Hospital of Parma, 43126 Parma, Italy.
Federica ValeriRegional Centre for Hemorrhagic and Thrombotic Diseases, Azienda Ospedaliera Universitaria Città della Salute e della Scienza,10126 Turin, Italy.
Maria Rosaria VillaHematology Unit, Ospedale Santa Maria di Loreto, 80142 Naples, Italy.ORCID 0009-0009-5953-0499
Ezio ZanonHaemophilia Centre, First Chair of Internal Medicine, Padua University Hospital, 35128 Padua, Italy.
Mariasanta NapolitanoDepartment of Health Promotion, Mother and Child Care (PROMISE), Internal Medicine and Medical Specialties, University of Palermo, 90127 Palermo, Italy.ORCID 0000-0001-8934-2936

Funding

Italian Ministry of Health RC2025Novo Nordisk (Italy) an unrestricted grant
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Delphi methodologyhemophilia Ahemophilia Bmanagementmonitoring instrumentoutcome assessmentpatient-reported outcomes

Identifiers

PMID41976833
PMCPMC13073016

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.