Evidence map›Paper›PMID 41975269›Full record

Trial reportMedical decision making : an international journal of the Society for Medical Decision Making2026

Social Media Health Information Formats and Endometriosis Treatment-Seeking Intentions: A Randomized Controlled Trial.

Alice Graham, Brooke Nickel, Kirsten McCaffery, Jenny Doust, Erin Cvejic, Tessa Copp

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Medical decision making : an international journal of the Society for Medical Decision Making, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Alice GrahamSydney Health Literacy Lab, Faculty of Medicine and Health, Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.ORCID 0009-0008-2166-3715
Brooke NickelSydney Health Literacy Lab, Faculty of Medicine and Health, Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.ORCID 0000-0002-8100-4278
Kirsten McCafferySydney Health Literacy Lab, Faculty of Medicine and Health, Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.
Jenny DoustAustralian Women and Girls' Health Research Centre, School of Public Health, The University of Queensland, Saint Lucia, QLD, Australia.ORCID 0000-0002-4024-9308
Erin CvejicSydney Health Literacy Lab, Faculty of Medicine and Health, Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.ORCID 0000-0002-6043-6071
Tessa CoppSydney Health Literacy Lab, Faculty of Medicine and Health, Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.ORCID 0000-0001-7801-5884

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BackgroundDespite many women learning about endometriosis on social media, posts about the condition often fail to reflect current evidence. With the content and credibility of online health messages being found to influence behavioral intentions in other areas, this study aimed to explore how the format of endometriosis-related social media posts affects women's intentions to get a laparoscopy for the diagnosis and treatment of endometriosis.DesignIn this 2 × 2 × (2) online randomized controlled trial, Australian women aged 18 to 45 y who had no prior endometriosis diagnosis were randomly assigned to view 1 of 4 mock Instagram posts. Post content (personal anecdote v. nonnarrative, factual information) and source (high-credibility "World Health Organization" (WHO) account v. low credibility layperson account) varied across conditions. A within-subjects component investigated change in intention when participants were informed of new treatment guidelines.ResultsA total of 1,473 women were included in the analysis. Instagram posts featuring an anecdote produced higher treatment-seeking intentions (mean difference [MD] = 0.22, 95% confidence interval [CI] = 0.04-0.39) and more favorable attitudes toward getting a laparoscopy compared with posts containing nonnarrative information (MD = 0.13, 95% CI = 0.01-0.25). While the WHO account was perceived as more credible (MD = 0.29, 95% CI = 0.17-0.41), there were no differences in intentions, perceived norms, or self-efficacy toward laparoscopy compared with the layperson account. Advising participants of new evidence regarding the limitations of laparoscopy reduced intentions to get the procedure (MD = 0.29, 95% CI = 0.21-0.37), irrespective of condition.ConclusionsFindings demonstrate the power of anecdotes in shaping treatment preferences. Supplementing evidence-based information with personal anecdotes may ensure accurate yet engaging health information is used by online endometriosis communities to seek appropriate care.

Indexed as

EndometriosisIntentionPatient Acceptance of Health CareSocial MediaAdolescentAdultAustraliaDigital MediaFemaleHumansLaparoscopyMedia ExposureMiddle AgedYoung AdultEndometriosishealth communicationlaparoscopysocial media

Identifiers

PMID41975269
PMCPMC13346596

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.