Evidence map›Paper›PMID 41971642›Full record

ArticleAlzheimer's & dementia (Amsterdam, Netherlands)

"I wasn't broken": Addressing stigma associated with dementia while Walking the Talk for Dementia.

Kate Irving, Fernando Aguzzoli Peres, Walter D Dawson, Jonathan Adrián Zegarra-Valdivia, Lingani Mbakile-Mahlanza, Sherril B Gelmon

Abstract read
In one paragraph

Article in Alzheimer's & dementia (Amsterdam, Netherlands). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Kate IrvingDublin City University Dublin Ireland.ORCID https://orcid.org/0000-0002-9255-4574
Fernando Aguzzoli PeresWalking the Talk for Dementia Institute Porto Alegre Brazil.
Walter D DawsonOregon Health & Science University Portland Oregon USA.
Jonathan Adrián Zegarra-ValdiviaGlobal Brain Health Institute University of California, San Francisco San Francisco California USA.
Lingani Mbakile-MahlanzaGlobal Brain Health Institute University of California, San Francisco San Francisco California USA.
Sherril B GelmonPortland State University Portland Oregon USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionWalking the Talk for Dementia (WTD) convenes people from every continent and multiple perspectives, including people with lived experience, in a 40-km walk followed by a 2-day symposium. The aim is collective reflective dialogue about dementia stigma without the burden of professional hierarchies.

methodsQualitative reflections during and immediately following the walk were analyzed using content analysis to identify common themes.

resultsThree themes demonstrate an evolution of perspectives about dementia and stigma: "meeting the person not the label", "a community in solidarity", and "I wasn't treated like I was broken, and I wasn't broken." DISCUSSION: WTD created an environment where people felt safe to recognize and express their unconscious biases. Participants observed that limiting beliefs about people with dementia were universal, regardless of context. These experiences involved deep self-learning. Participants left the event with a deeper understanding of dementia-related stigma and its impacts.

Indexed as

dementialived experiencenovel eventstigma

Identifiers

PMID41971642
PMCPMC13069464

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.