Evidence map›Paper›PMID 41965209›Full record

ArticleThe Journal of surgical research2026

Perioperative Ostomy Care and Education Experiences by Patient and Caregiver Health Literacy.

Karen Fetsch, Hannah Ficarino Sheffer, Alfonsus Adrian H Harsono, Smita Bhatia, Wendy Landier, Daniel Chu, Robert Hollis

Abstract read
In one paragraph

Article in The Journal of surgical research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Karen FetschDivision of Gastrointestinal Surgery, Department of Surgery, University of Alabama at Birmingham, Birmingham, Alabama.
Hannah Ficarino ShefferDivision of Gastrointestinal Surgery, Department of Surgery, University of Alabama at Birmingham, Birmingham, Alabama.
Alfonsus Adrian H HarsonoDivision of Gastrointestinal Surgery, Department of Surgery, University of Alabama at Birmingham, Birmingham, Alabama.
Smita BhatiaInstitute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama.
Wendy LandierInstitute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama.
Daniel ChuDivision of Gastrointestinal Surgery, Department of Surgery, University of Alabama at Birmingham, Birmingham, Alabama.
Robert HollisDivision of Gastrointestinal Surgery, Department of Surgery, University of Alabama at Birmingham, Birmingham, Alabama; Institute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama. Electronic address: rhhollis@uabmc.edu.

Funding

Surgical Oncology Research Training ProgramT32CA229102 · NCI · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI HERBERT CHEN · 2018 to 2026
$3.2M
Piloting an Implementation Strategy for Mainstream Genetic Testing in Colorectal CancerK08CA293312 · NCI · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI Robert H Hollis · 2024 to 2026
$577k
Short-Term Research Experiences Advancing Medical Students (STREAMS)T35DK116670 · NIDDK · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI HERBERT CHEN, Daniel I Chu · 2019 to 2026
$371k
NCI NIH HHS K08 CA293312NCI NIH HHS T32 CA229102NIDDK NIH HHS T35 DK116670
6 · The paper itself

Abstract

introductionPatients with a new ostomy and their caregivers face challenges learning ostomy care. Health literacy impacts how patients access and understand health-related resources. This study sought to explore differences in perioperative ostomy care and education experiences for patients and caregivers by health literacy level.

methodsPatients with a new ostomy and their caregivers of varying health literacy levels were purposively recruited to complete semistructured interviews to explore perioperative experiences regarding ostomy care. Health literacy level was defined using the Brief Health Literacy Screener. Interviews were transcribed and analyzed using a comparative thematic analysis approach.

resultsAmong patients (n = 20) and caregivers (n = 15) interviewed, 45% of patients and 33% of caregivers had limited health literacy. Three major themes were identified representing unique barriers experienced by limited health literacy participants compared to adequate health literacy participants: "accessing ostomy-related resources" (i.e., difficulty obtaining and understanding education materials), "ostomy appliance instruction" (i.e., desire for more effective education and troubleshooting), and "attitudes/coping" (i.e., negative emotions surrounding their ostomy). Both health literacy groups reported "not knowing what to expect," "caring for inflamed skin," and "variability in utility of home health" as common barriers to ostomy care.

conclusionsPerioperative ostomy care and education experiences vary by patient and caregiver health literacy levels. Limited health literacy was associated with barriers regarding accessing resources, ostomy education, and attitudes/coping. These barriers should be addressed in future interventions to provide health literacy-sensitive ostomy care and education.

Indexed as

CaregiversHealth LiteracyOstomyPatient Education as TopicPerioperative CareAdultAgedAged, 80 and overFemaleHumansMaleMiddle AgedCaregivingColorectal cancerHealth literacyInflammatory bowel diseaseOstomy

Identifiers

PMID41965209
PMCPMC13198361

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.