Evidence map›Paper›PMID 41953927›Full record

ArticleJournal of metabolic health2026

Patient, family and provider experiences with a very low-carbohydrate approach for type 1 diabetes.

Svetlana Azova, Erin Gordon, George M Edwards, Owen Henn, David S Ludwig, Katharine Garvey, Belinda S Lennerz

Abstract read
In one paragraph

Article in Journal of metabolic health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Svetlana AzovaDivision of Endocrinology, Boston Children's Hospital, Boston, United States of America.ORCID 0000-0003-3685-1387
Erin GordonDivision of Gastroenterology, Hepatology and Nutrition, Boston Children's Hospital, Boston, United States of America.ORCID 0009-0001-3504-6207
George M EdwardsDivision of Endocrinology, Boston Children's Hospital, Boston, United States of America.ORCID 0009-0004-8703-5106
Owen HennDivision of Endocrinology, Boston Children's Hospital, Boston, United States of America.ORCID 0000-0001-6950-4432
David S LudwigDivision of Endocrinology, Boston Children's Hospital, Boston, United States of America.ORCID 0000-0003-3307-8544
Katharine GarveyDivision of Endocrinology, Boston Children's Hospital, Boston, United States of America.ORCID 0000-0002-2289-7344
Belinda S LennerzDivision of Endocrinology, Boston Children's Hospital, Boston, United States of America.ORCID 0000-0002-8021-7984

Funding

Diabetes-Docs: Physician-Scientist Career Development Program (DiabDocs)K12DK133995 · NIDDK · STANFORD UNIVERSITY · PI LINDA A DIMEGLIO, David Matthew Maahs · 2022 to 2026
$16.0M
Effect of Dietary Carbohydrate on Diabetes Control and Beta Cell Function in Children with Newly Diagnosed Diabetes.”R01DK135884 · NIDDK · BOSTON CHILDREN'S HOSPITAL · PI LENNERZ, BELINDA S · 2023 to 2025
$2.4M
NIDDK NIH HHS K12 DK133995NIDDK NIH HHS R01 DK135884
6 · The paper itself

Abstract

Background: Adoption of a very low-carbohydrate (VLC) approach to aid in type 1 diabetes (T1D) management has recently gained momentum; however, there is limited research to guide its optimal implementation and concerns about sustainability and safety. Aim: This study characterises the lived experiences of adult patients and caregivers of children with T1D who follow a VLC approach and patients' diabetes medical providers (DMPs). Setting: Online surveys were fielded internationally to members of the Facebook group TypeOneGrit who follow the VLC approach. Methods: We performed applied thematic analysis of data based on responses to six open-ended survey questions. Multidisciplinary consensus coding was conducted, culminating in iterative higher-level qualitative analysis to generate a thematic depiction of participant experiences. Results: A total of 931 responses from 155 adult patients, 112 caregivers and 61 DMPs were included. Analysis yielded four cluster themes: (1) Predominantly negative patient and caregiver experiences within the medical system with regard to the VLC approach, (2) mainly positive patient and caregiver experiences with the VLC approach despite challenges, (3) desire for widespread dissemination of information on the VLC approach and (4) acknowledgement of the positive attributes of the VLC approach and/or patient or family by DMPs, amid DMP concern over potential or encountered adverse outcomes. Conclusion: This study produced valuable insights on the perceptions and experiences of adult patients, caregivers of children with T1D and patients' DMPs with regard to the VLC approach. Contribution: The VLC approach can be a viable adjunctive method for T1D management but requires increased understanding and support.

Indexed as

medical nutrition therapyqualitative researchsurvey studytype 1 diabetesvery low-carbohydrate diet

Identifiers

PMID41953927
PMCPMC13054962

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.