ArticleInternational journal of qualitative studies on health and well-being2026
Perceptions and experiences of caretakers of children with neurologic deficits after severe malaria in Uganda.
Article in International journal of qualitative studies on health and well-being, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeNeurologic deficits may occur after severe malaria in childhood. This study sought to determine the perceptions and experiences of the caretakers of children with neurologic deficits after severe malaria in Uganda.
methodsThis was a thematic analysis informed by a phenomenological interest in lived experience which involved twenty-three in-depth interviews and four focus group discussions. Interviews were audio-taped, transcribed verbatim, and back-translated into English for those conducted in the local languages. Data were coded and analyzed using content thematic analysis.
resultsNeurologic deficits included motor, movement, cognitive, behavioral, and sensory deficits as well as epilepsy. Eight themes emerged which included: mixed perceptions about the deficits after severe malaria, difficulty in educating the impaired children, mistreatment by the community, mental and emotional distress, financial strain, misconceptions, misunderstandings and conflicts, limited access to specialized care services, and adaptation to a new way of life.
conclusionCaretakers have misconceptions about the cause of neurologic deficits in their children. Caretakers have negative experiences, however, they learn to cope with their children's impairments. Health messaging and education campaigns targeting caretakers of children with neurologic deficits within communities should be conducted to provide awareness of the neurologic deficits of severe malaria.
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