Evidence map›Paper›PMID 41945902›Full record

ArticleJMIR human factors2026

e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study.

Chelsea Coumoundouros, Abla Sami, Paul Farrand, Robbert Sanderman, Louise von Essen, Joanne Woodford

Abstract read
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Article in JMIR human factors, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Chelsea CoumoundourosCIRCLE - Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-5539-974X
Abla SamiCIRCLE - Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0009-0001-8708-2875
Paul FarrandClinical Education, Development and Research (CEDAR), Psychology, University of Exeter, Exeter, United Kingdom.ORCID 0000-0001-7898-5362
Robbert SandermanDepartment of Health Psychology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.ORCID 0000-0002-0823-1159
Louise von EssenCIRCLE - Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-5816-7231
Joanne WoodfordCIRCLE - Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-5062-6798

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInformal caregivers of people living with chronic kidney disease commonly experience mental health difficulties. However, there is currently limited access to scalable psychological interventions such as those using e-mental health platforms. Furthermore, there is an absence of such interventions tailored for this group of caregivers, which may limit acceptability.

objectiveTo inform future e-mental health intervention development, this study aimed to explore preferences for e-mental health interventions among informal caregivers of people living with chronic kidney disease.

methodsA total of 13 informal caregivers of people living with chronic kidney disease participated in semistructured interviews. Eligible informal caregivers lived in the United Kingdom and were recruited via nonprofit organizations and social media advertisements. Semistructured interviews followed a topic guide exploring caregivers' e-mental health intervention preferences. Data were analyzed using manifest content analysis.

resultsA total of 4 categories and 13 subcategories were generated. "Design preferences" illustrates key intervention design features that were important to caregivers, such as involving caregivers and other interest-holders in the design process. "Content preferences" describes the information caregivers valued in an intervention, such as information about chronic kidney disease and resources to support caregivers. "Support preferences" reflects the characteristics of support caregivers preferred if support was available as part of the intervention, such as peer support and providing support that accommodates individual preferences. Lastly, "Dissemination preferences" describes methods caregivers recommended to promote intervention uptake, such as engaging communication strategies and trusted and accessible sources of information.

conclusionsCaregivers identified a number of e-mental health intervention design and delivery preferences that should be considered when developing e-mental health interventions for caregivers of people living with chronic kidney disease. To ensure such interventions are acceptable, feasible, and relevant, co-design approaches should be adopted during the intervention development process.

Indexed as

CaregiversRenal Insufficiency, ChronicAdultAgedDigital HealthFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchUnited Kingdomchronic kidney diseasee-mental healthinformal caregiverintervention development

Identifiers

PMID41945902
PMCPMC13100580

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