Evidence map›Paper›PMID 41939691›Full record

ArticleNIHR open research2026

The configuration, funding and costs of providing services for children with behaviours that challenge.: A report undertaken as part of the Mapping and Evaluating Services for Children with Learning Disabilities and Behaviours that Challenge (MELD).

Elizabeth-Ann Schroeder, Richard Hastings, Nicholas Manktelow, Ashley Liew, Mark Lovel, Caroline Richards, Jill Bradshaw, Nick Gore, Paul Thompson, Peter Langdon and 2 more

Abstract read
In one paragraph

Article in NIHR open research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Elizabeth-Ann SchroederNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, England, OX26GG, UK.ORCID https://orcid.org/0000-0003-0236-2833
Richard HastingsSchool of Social Policy and Society, University of Birmingham, Birmingham, England, B15 2TT, UK.ORCID https://orcid.org/0000-0002-0495-8270
Nicholas ManktelowSchool of Social Policy and Society, University of Birmingham, Birmingham, England, B15 2TT, UK.
Ashley LiewPaediatric Liaison Psychiatry Service | National & Specialist CAMHS, South London and Maudsley NHS Foundation Trust, London, SE5 8AZ, UK.
Mark LovelChild & Adolescent Mental Health Service, Tees, Esk and Wear Valleys NHS Foundation Trust, Stockton on Tees, TS18 3TX, UK.ORCID https://orcid.org/0000-0001-8188-2831
Caroline RichardsSchool of Psychology, University of Birmingham, Birmingham, England, B15 2TT, UK.ORCID https://orcid.org/0000-0002-5444-4147
Jill BradshawSchool of Social Policy and Society, University of Birmingham, Birmingham, England, B15 2TT, UK.ORCID https://orcid.org/0000-0002-0379-8877
Nick GoreTizard Centre, University of Kent School of Social Policy Sociology and Social Research, Canterbury, England, CT2 7LR, UK.
Paul ThompsonSchool of Social Policy and Society, University of Birmingham, Birmingham, England, B15 2TT, UK.ORCID https://orcid.org/0000-0001-9940-6913
Peter LangdonSchool of Social Policy and Society, University of Birmingham, Birmingham, England, B15 2TT, UK.ORCID https://orcid.org/0000-0002-7745-1825
Stavros PetrouNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, England, OX26GG, UK.
MELD Research Study Team

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Children with intellectual disabilities and behaviours that challenge (BtC) and their families require complex, multi-agency support. Despite policy commitments to strengthen community-based provision, including those arising from Transforming Care and the forthcoming Mental Health Bill (2025), there remains limited evidence on how these services are configured or what they cost to deliver. The National Institute for Health and Care Excellence ( NICE, 2018) identified major evidence gaps in optimal service design, integration, and cost-effectiveness. Objective: This research explores the structure and associated costs of community-based services in England that support children with intellectual disabilities and BtC. It aims to describe the configuration of local "service models", identify cost drivers, and clarify data requirements for commissioning and evaluation. Methods: Within the NIHR-funded MELD (Mapping and Evaluating Services for Children with Learning Disabilities and Behaviours that Challenge) programme, 278 services were identified across England. Using survey data (n=161), Latent Class Analysis and descriptive synthesis produced a typology of five community service models. Nineteen representative sites participated in a detailed costing study using a bespoke data collection instrument aligned with national unit-cost frameworks. Quantitative and narrative data on staffing, pathways, and overheads were analysed descriptively and thematically, with input from a Parent Advisory Group. Results: Five distinct service models were identified: generic CAMHS, ID-CAMHS, Children and Young People's Disability, Specialist BtC Support, and All-Age services. Costs were primarily driven by staffing mix, intensity of BtC support, and organisational structure. Considerable heterogeneity was observed in funding flows, eligibility, and waiting times. Conclusions: This study provides the first national overview of community service configurations for children with intellectual disabilities and BtC. The findings highlight significant variation in organisation and cost, informing future economic evaluation and service-model optimisation in line with ongoing policy reform.

Indexed as

Behaviours that challengeChildren and young peopleCommunity-based servicesCost analysisHealth economicsIntellectual disabilityService models

Identifiers

PMID41939691
PMCPMC13044538

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.