Evidence map›Paper›PMID 41935976›Full record

ArticleThe Journal of adolescent health : official publication of the Society for Adolescent Medicine2026

Decisional Conflict Among Adolescents and Young Adults Before and After Facilitated Decision-Making About Learning Personal Genomic Information.

Jennifer S Duann, Lisa J Martin, William B Brinkman, Cynthia A Prows, Michelle L McGowan, Melanie F Myers

Abstract read
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In one paragraph

Article in The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jennifer S DuannDivision of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, Ohio. Electronic address: duannjs@mail.uc.edu.
Lisa J MartinDivision of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, Ohio.
William B BrinkmanDepartment of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, Ohio; Division of General & Community Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
Cynthia A ProwsDivision of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Patient Services, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
Michelle L McGowanDepartment of Quantitative Health Sciences, Biomedical Ethics Research Program, Mayo Clinic, Rochester, Minnesota; Department of Women's, Gender and Sexuality Studies, University of Cincinnati, Cincinnati, Ohio.
Melanie F MyersDivision of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, Ohio.

Funding

Engaging adolescents in decisions about return of genomic research resultsR01HG010166 · NHGRI · CINCINNATI CHILDRENS HOSP MED CTR · PI MCGOWAN, MICHELLE L, MYERS, MELANIE F · 2019 to 2023
$3.6M
NHGRI NIH HHS R01 HG010166
6 · The paper itself

Abstract

purposeTo determine if decisional conflict differed between adolescent (ages 13-17) and young adult (ages 18-21) research participants making decisions about learning actual genomic testing results, and whether decisional conflict changed after a facilitated decision-making (FDM) session.

methodsParticipants between the ages of 13-21 (n = 483) completed decisional conflict scale (DCS) surveys after using an electronic decision tool to make independent choices about learning genomic testing results (T1) and again following FDM with a study team member and parent if one was involved (T2). Participants had the option to change their choices at T2. We compared DCS scores of adolescents and young adults at T1 and T2.

resultsMedian total DCS scores were significantly higher for adolescents than young adults at T1 (20.3 vs. 7.8; p < .0001) and T2 (11.7 vs. 1.6; p < .0001). There were significant decreases in median DCS scores from T1 to T2 among adolescents (20.3-11.7; p < .0001) and young adults (7.8-1.6; p < .0001). DISCUSSION: Although DCS scores were low overall, adolescents experienced higher decisional conflict than young adults. Decisional conflict levels decreased among both cohorts after FDM. Researchers and clinicians should facilitate discussions to engage adolescents and young adults in values-centric informed decisions about genomic testing.

Indexed as

Conflict, PsychologicalDecision MakingGenetic TestingAdolescentFemaleHumansMaleSurveys and QuestionnairesYoung AdultAdolescentDecisional conflictFacilitated decision-makingGenomic testingReturn of resultsYoung adult

Identifiers

PMID41935976
PMCPMC13397681

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.