ArticleBMC musculoskeletal disorders2026
Perceptions of black women with systemic lupus erythematosus on continuity in care coordination: a mixed methods pilot study conducted in the USA.
Article in BMC musculoskeletal disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundContinuity in systemic lupus erythematosus (SLE) care coordination is imperative to achieving positive outcomes in Black women with SLE. However, continuity is not well defined or understood in SLE care coordination for this population. Thus, exploring the perspectives of Black women with SLE to understand barriers and facilitators to continuity in care coordination is a critical first step.
methodsA convergent parallel mixed methods study was conducted in the southern region of the USA between November 2021 and April 2022 using survey data and semi-structured interviews. Quantitative data were analyzed using descriptive statistics, and qualitative data using constant comparison and thematic analysis. Data sets were analyzed separately and then merged for data interpretation.
resultsFacilitators such as trust, access to resources, and information sharing were the most critical facilitators for achieving continuity. Conversely, negative provider behaviors such as dismissive or demeaning language were the most profound barriers. Finally, relational continuity was found to be the most important of the three areas of continuity and determined the uptake of informational and management continuity.
conclusionDetermining continuity in care coordination for a multimorbid condition such as SLE can be complex. Relational continuity plays a critical role in all areas of continuity and should be weighed considerably in achieving care coordination. Future research should assess the impact of relational continuity at the provider and system levels.
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