Observational studyInternational journal of population data science2025
Administrative data linkage to Census 2021 in Wales, UK: A cross-sectional study examining completeness and representativeness for population analytics.
Observational study in International journal of population data science, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Introduction: Measuring population representativeness is an important methodological step in public health and epidemiological studies. Objectives: To explore the representativeness of Census 2021 data linkage when compared with the Welsh Demographic Service Dataset (WDSD) within the Secure Anonymised Information Linkage (SAIL) Databank for research on the population of Wales, UK. To understand the characteristics of individuals linked and not linked and which subgroups of the population are disproportionately represented in data linkage population-wide studies. Methods: An observational, population-wide cross-sectional comparison study, utilising administrative demographic data and decennial survey data held in SAIL. Two data sources, the WDSD and Census 2021, were used to create and compare two cohorts of the resident population of Wales, UK, on 21 Results: The central analytical cohort contained 2,440,191 individuals present in both data sources. WDSD contained 3,090,976 individuals with 2,965,196 individuals in Census data.With a positively classed outcome indicating non-linkage from WDS to Census the characteristics associated with the highest odds of individuals being registered in WDS but not linked to Census (in SAIL) are male (aOR = 1.28 [95%CI 1.28,1.32]), 75+ years of age (aOR = 1.27 [95%CI 1.25,1.29]), of Asian ethnicity (aOR = 1.27 [95%CI 1.24,1.30]), a more recent migrant (arriving to UK after 2000) (aOR = 1.30 [95%CI 1.28,1.32]), a member of the LGBTQ+ community (aOR = 1.29 [95%CI 1.25,1.29]) or not disclosing LGBTQ+ status (aOR = 1.41 [95%CI 1.39,1.43]), being separated, divorced or widowed (aOR = 1.28 [95%CI 1.27,1.29]), or living in rental accommodation (aOR = 1.47 [95%CI 1.45,1.48]). Conclusions: Results show that certain personal characteristics and sub-groups of the population of Wales are disproportionately represented when combining population estimates and utilising Census data in data linkage population-wide studies in SAIL.
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