Evidence map›Paper›PMID 41920479›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2026

Factors influencing the caregiver burden on primary family caregivers of stroke survivors: a scoping review.

Yang Hongwei, Wang Juan, Ji Hui, Li Zhongjian, Li Xuechun, An Yaqiong, Zeng Mingyue, Ruan Lingmei, Wu Xiaoqian

Abstract readScoping Review
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Yang HongweiDali University Nursing College, Dali City, Yunnan Province, China.
Wang JuanAffiliated Hospital of Panzhihua University, Panzhihua City, Sichuan Province, China. 1911813548@qq.com.
Ji HuiPanzhihua College of Health and Wellness, Panzhihua University, Panzhihua City, Sichuan Province, China.
Li ZhongjianDali University Nursing College, Dali City, Yunnan Province, China.
Li XuechunDali University Nursing College, Dali City, Yunnan Province, China.
An YaqiongAffiliated Hospital of Panzhihua University, Panzhihua City, Sichuan Province, China.
Zeng MingyueAffiliated Hospital of Panzhihua University, Panzhihua City, Sichuan Province, China.
Ruan LingmeiDali University Nursing College, Dali City, Yunnan Province, China.
Wu XiaoqianDali University Nursing College, Dali City, Yunnan Province, China.

Funding

Panzhihua Key Laboratory of Characteristic Biopharmaceuticals TSSWYY-202506Sichuan Province BIM+ Application and Intelligent Visualization Engineering Technology Research Center 25BIMYX0006
6 · The paper itself

Abstract

backgroundStroke is a leading cerebrovascular disease characterized by high incidence and significant disability rates. Following the acute phase, most stroke survivors require prolonged home-based rehabilitation and care, a responsibility predominantly undertaken by primary family caregivers. The sustained demands of caregiving often impose considerable physical, psychological, and social burdens on these individuals.

objectiveThis review aims to systematically identify and synthesize the factors influencing the caregiving burden among primary family caregivers of stroke survivors.

methodsThis scoping review followed the Joanna Briggs Institute’s methodological framework. A comprehensive literature search was conducted in the following databases: Web of Science, PubMed, CINAHL, Cochrane Library, Embase, CNKI, CBM, Wanfang Date, and VIP. The search included articles published from inception until October 24, 2025. All study designs reporting on factors influencing the caregiving burden of primary family caregivers of stroke survivors were eligible for inclusion.

resultsA total of 2005 records were identified, of which 35 articles met the inclusion criteria. The included studies comprised 30 cross-sectional studies (85.71%), four prospective cohort studies (11.43%), and one mixed-methods study (2.86%). Most of the included studies were from Asian countries, including China (n = 28), South Korea (n = 2), Poland (n = 2), Greece (n = 1), India (n = 1), and Thailand (n = 1). Eleven studies (31.4%) reported incidence data, but substantial heterogeneity precluded direct quantitative synthesis. A total of 65 influencing factors were identified and grouped into three categories: caregiver-related factors, patient-related factors, and family and social support factors. The most frequently reported factors included caregiver age (n = 19), average daily caregiving hours (n = 19), patient activities of daily living (n = 19), caregiver - patient relationship (n = 16), and caregiver education level (n = 16).

conclusionThe caregiving burden among primary family caregivers of stroke survivors is influenced by a wide range of factors. To reconcile inconsistent or contradictory findings, further research using standardized assessment tools and methodologies is warranted.

Indexed as

Caregiver BurdenCaregiversCost of IllnessStrokeStroke RehabilitationSurvivorsHumansQuality of LifeCaregiving burdenEvidence-based nursingPrimary caregiverScoping reviewStroke

Identifiers

PMID41920479
PMCPMC13043595

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.