Evidence map›Paper›PMID 41920430›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2026

Psychometric validation of the Danish cancer caregiver roles and responsibilities scale.

Iben Husted Nielsen, Christian Landbo, Tine Rosenberg, Karin Piil, Anders Tolver, Valerie Shilling, Mary Jarden

Abstract readValidation Study
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Iben Husted NielsenDepartment of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. Iben.husted.nielsen@regionh.dk.ORCID http://orcid.org/0000-0001-7618-3729
Christian LandboDepartment of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.ORCID http://orcid.org/0009-0003-0657-2456
Tine RosenbergDepartment of Haematology, Odense University Hospital, Odense, Denmark.ORCID http://orcid.org/0000-0002-7874-5526
Karin PiilDepartment of Oncology, Copenhagen University Hospital, Copenhagen, Denmark.ORCID http://orcid.org/0000-0001-7972-4674
Anders TolverStatistics and Data Analysis, Danish Cancer Institute, DK- 2100, Copenhagen, Denmark.ORCID http://orcid.org/0000-0003-1109-9889
Valerie ShillingDepartment of Clinical and Experimental Medicine, Brighton and Sussex Medical School, University of Brighton and University of Sussex, Brighton, UK.ORCID http://orcid.org/0000-0002-5610-0321
Mary JardenDepartment of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.ORCID http://orcid.org/0000-0003-3040-8384

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe purpose of this study was to translate and culturally adapt the Caregiver Roles and Responsibilities Scale (CRRS) into Danish and to conduct a psychometric analysis of its validity and reliability among informal caregivers of cancer patients in Denmark.

methodsThe translation and cultural adaptation followed the Functional Assessment of Chronic Illness Therapy (FACIT) translation methodology. Cognitive debriefing interviews were carried out with ten native Danish-speaking caregivers to assess comprehensibility and relevance. Psychometric properties were evaluated using a survey, test-retest design, with data collected from 180 caregivers at baseline (t0) and a subsample of 80 caregivers at the second time point (t1), 10 days after baseline, to evaluate test–retest reliability using Intraclass Correlation Coefficient (ICC).

resultsThe Danish CRRS demonstrated good psychometric properties, with Cronbach’s α values exceeding the acceptable threshold of 0.70 for most subscales, indicating high internal consistency. ICC analysis showed strong test—retest reliability across all subscales (ICC ≥ 0.80) and excellent reliability for the total CRRS score (ICC = 0.91), confirming the measure’s reliability over time.

conclusionThe Danish CRRS demonstrated good validity and test—retest reliability. The CRRS is now available for Danish-speaking individuals to use in both clinical cancer care and research for assessing the impact of cancer on the lives and wellbeing of informal caregivers.

Indexed as

CaregiversNeoplasmsPsychometricsRoleAdultAgedDenmarkFemaleHumansMaleMiddle AgedQuality of LifeReproducibility of ResultsSurveys and QuestionnairesCancerCaregivingPsychometric performanceQuality of lifeValidation

Identifiers

PMID41920430
PMCPMC13043563

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.