Evidence map›Paper›PMID 41918953›Full record

ArticleERJ open research2026

Access to lymphangioleiomyomatosis care across Europe: an ERN-LUNG survey of clinical practice, and the case for a European registry and trial network.

Donal O'Malley, Elisabeth Humbert-Dorfmüller, Joan A Barberà, Aernoud van Batenburg, Elisabeth Bendstrup, Vincent Cottin, Davide Elia, Antoine Froidure, Jan Grutters, Sergio Harari and 13 more

Abstract readLetter
In one paragraph

Article in ERJ open research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

23 authors.

Donal O'MalleyDepartment of Respiratory Medicine, St Vincent's University Hospital, Dublin, Ireland.
Elisabeth Humbert-DorfmüllerLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Joan A BarberàDepartment of Pulmonary Medicine, Hospital Clínic-IDIBAPS, Barcelona, Spain.
Aernoud van BatenburgLAM Working Group of ERN-LUNG, Frankfurt, Germany.ORCID https://orcid.org/0000-0002-2841-7911
Elisabeth BendstrupLAM Working Group of ERN-LUNG, Frankfurt, Germany.ORCID https://orcid.org/0000-0002-4238-6963
Vincent CottinLAM Working Group of ERN-LUNG, Frankfurt, Germany.ORCID https://orcid.org/0000-0002-5591-0955
Davide EliaLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Antoine FroidureLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Jan GruttersLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Sergio HarariLAM Working Group of ERN-LUNG, Frankfurt, Germany.ORCID https://orcid.org/0000-0001-8629-7391
Fernanda Hernandez-GonzalezLAM Working Group of ERN-LUNG, Frankfurt, Germany.ORCID https://orcid.org/0000-0001-5113-4285
Maria KokosiLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Thomas Kromann LundLAM Working Group of ERN-LUNG, Frankfurt, Germany.ORCID https://orcid.org/0000-0002-8987-3136
Effrosyni D ManaliLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Gergely MeszarosLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Geert van PottelbergeLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Elzbieta RadzikowskaLAM Working Group of ERN-LUNG, Frankfurt, Germany.ORCID https://orcid.org/0000-0002-2585-8594
Jacobo SellaresLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Anna SvenningssonLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Marcel VeltkampLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Thomas WagnerLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Helge HebestreitLAM Working Group of ERN-LUNG, Frankfurt, Germany.
Cormac McCarthyDepartment of Respiratory Medicine, St Vincent's University Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0003-2896-5210

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Identifiers

PMID41918953
PMCPMC13034069

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.