Evidence map›Paper›PMID 41918103›Full record

ArticleBMC health services research2026

Provider and caregiver perspectives on vision services for childhood cancer survivors: a qualitative study.

Asha Parvathaneni, Luke Zabotka, Jacob Strelnikov, Allison J L'Hotta, Matthew J Ehrhardt, Maria Montoya, Kyathi Thallapureddy, Robert J Hayashi, Margaret Reynolds, Sara Malone

Abstract read
In one paragraph

Article in BMC health services research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Asha Parvathaneni *School of Medicine, Washington University in St. Louis, St. Louis, MO, USA.
Luke Zabotka *School of Public Health, Washington University in St. Louis, St. Louis, MO, 63110, USA.
Jacob StrelnikovSchool of Medicine, Washington University in St. Louis, St. Louis, MO, USA.
Allison J L'HottaDepartment of Physical Medicine and Rehabilitation, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Matthew J EhrhardtDepartment of Oncology, St. Jude Children's Research Hospital, Memphis, TN, USA.
Maria MontoyaSchool of Public Health, Washington University in St. Louis, St. Louis, MO, 63110, USA.
Kyathi ThallapureddyDepartment of Biomedical Sciences, University of Missouri - Kansas City, Kansas City, MO, USA.
Robert J HayashiDepartment of Pediatrics, Washington University School of Medicine, St. Louis, MO, USA.
Margaret ReynoldsDepartment of Ophthalmology and Visual Sciences, Washington University School of Medicine, St. Louis, MO, USA.
Sara MaloneSchool of Public Health, Washington University in St. Louis, St. Louis, MO, 63110, USA. sara.malone@wustl.edu.

Funding

WU INSTITUTE OF CLINICAL AND TRANSLATIONAL SCIENCESUL1TR002345 · NCATS · WASHINGTON UNIVERSITY · PI William G. Powderly · 2017 to 2026
$97.8M
NCATS NIH HHS UL1 TR002345
6 · The paper itself

Abstract

purposeThis study qualitatively explored barriers and facilitators to accessing supportive vision services for childhood cancer survivors with vision deficits and identified current service-delivery contexts from the perspectives of community professionals and caregivers.

methodsParticipants included caregivers and professionals who completed semi-structured interviews. Provider questions focused on patient identification and assessment, follow-up protocols, and available resources, while caregiver questions addressed navigating survivorship care, academic needs, and goals for their children. Transcripts were thematically analyzed following inductive and deductive coding.

resultsSix caregivers and 10 professionals completed interviews. Thematic analysis resulted in three contexts for barriers and facilitators: school settings, community organizations, and healthcare settings. Obstacles children and their families may face when navigating the care system include service eligibility, financial barriers, transportation barriers, and geographical barriers. Caregivers described their care navigation experience through the same three contexts.

conclusionChildhood cancer survivors with retinoblastoma face substantial barriers to vision-related support across school, community, and clinical settings. This includes limited access to specialists, inequitable access to resources, and fragmented referral pathways. This study highlights the need for care coordination among healthcare providers, educators, and community agencies to improve functional, academic, and quality-of-life outcomes for this population. IMPLICATIONS FOR CANCER SURVIVORS: The high survival rate of retinoblastoma leaves a population with vision deficits, yet there remains a lack of integration of interventions for this population to address such deficits. Understanding barriers to vision care in survivorship can inform where to implement future interventions to increase this population’s health service utilization.

Indexed as

Cancer SurvivorsCaregiversHealth PersonnelHealth Services AccessibilityVision DisordersAdolescentAdultChildChild, PreschoolFemaleHumansInterviews as TopicMaleQualitative ResearchRetinoblastomaCare coordinationChildhood cancer survivorshipRetinoblastomaVision care

Identifiers

PMID41918103
PMCPMC13156844

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LicenceCC BY-NC-ND
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.