Evidence map›Paper›PMID 41917916›Full record

ArticleBMC palliative care2026

Healthcare professionals' experiences of delivering palliative and end-of-life care in ethnically diverse communities: a qualitative study.

Jodi Emma Wainwright, Erica Jane Cook, Catherine Haslam, Elaine Tolliday, Nasreen Ali, Mehrunisha Suleman, Emma Wilkinson, Gurch Randhawa

Abstract read
In one paragraph

Article in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jodi Emma WainwrightInstitute for Health and Wellbeing Research, University of Bedfordshire, Luton, England. jodiemma.wainwright@beds.ac.uk.
Erica Jane CookSchool of Psychology, University of Bedfordshire, Luton, England.
Catherine HaslamInstitute for Health and Wellbeing Research, University of Bedfordshire, Luton, England.
Elaine TollidayKeech Hospice Care, Luton, England.
Nasreen AliInstitute for Health and Wellbeing Research, University of Bedfordshire, Luton, England.
Mehrunisha SulemanEthox Centre, University of Oxford, Oxford, England.
Emma WilkinsonInstitute for Health and Wellbeing Research, University of Bedfordshire, Luton, England.
Gurch RandhawaInstitute for Health and Wellbeing Research, University of Bedfordshire, Luton, England.

Funding

National Institute for Health and Care Research NIHR135381
6 · The paper itself

Abstract

backgroundPersistent inequalities in palliative and end-of-life care continue to affect ethnically diverse populations in the UK, with disparities in access, engagement, and quality of care. This study explored the perspectives of health professionals and service providers on barriers and facilitators to equitable palliative and end-of-life care in England (Bedfordshire, Hertfordshire, and Milton Keynes). The research was embedded within the KEEPNET initiative, a Research Partnership Network aimed at co-producing solutions to local healthcare inequalities.

methodsA qualitative design was employed using semi-structured interviews with six purposively sampled professionals across statutory and third sector palliative and end-of-life care services in Bedfordshire, Hertfordshire, and Milton Keynes. Participants included clinicians, service managers, and hospice-based practitioners. Data were collected in March 2023 and analysed thematically using an inductive approach to identify key patterns in professional experiences and perceptions of delivering care to ethnically diverse communities.

resultsThree overarching themes were identified: (1) access to services (2), uptake of services, and (3) experiences of engaging with services. Barriers included language differences, mistrust of statutory services, cultural misconceptions around palliative and end-of-life care and limited outreach effectiveness. Facilitators included compassionate, individualised care; trust-building through culturally sensitive communication; and community engagement through faith and local leaders. Structural challenges such as workforce shortages and limited weekend provision were also reported. The Research Partnership Network model supported dialogue and capacity building between professionals and communities.

conclusionCulturally competent, community-embedded approaches are essential to addressing disparities in palliative and end-of-life care. Research Partnership Networks offer a collaborative framework for developing responsive and inclusive care models that align with the lived realities of ethnically diverse populations. To ensure equitable care at the end of life, investment in cultural training, community partnerships, and co-produced service development is required.

Indexed as

Cultural DiversityCulturally Competent CareEthnicityHealth PersonnelPalliative CareTerminal CareAdultEnglandFemaleHealth Services AccessibilityHumansInterviews as TopicMaleQualitative ResearchCommunity engagementEnd of LifeEthnic minoritiesHealth inequalitiesPalliative careResearch partnership network

Identifiers

PMID41917916
PMCPMC13169695

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.