Evidence map›Paper›PMID 41917525›Full record

ArticleDigestive diseases and sciences2026

The Multiple Dimensions of Self-Management in Active Inflammatory Bowel Disease: A Qualitative Analysis of Patients' Daily Lived Experiences.

Shirley Cohen-Mekelburg, Gal Hodish, Drew Ebner, Ken Resnicow, Akbar K Waljee, Sameer Saini, Sarah Hawley, Melissa Dejonckheere, Megan Riehl, Jessica Naftaly and 5 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Digestive diseases and sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Shirley Cohen-MekelburgDivision of Gastroenterology and Hepatology, University of Michigan Medicine, Ann Arbor, MI, USA. shcohen@med.umich.edu.
Gal HodishDivision of Gastroenterology and Hepatology, University of Michigan Medicine, Ann Arbor, MI, USA.
Drew EbnerCollege of Literature, Science, and Art, University of Michigan, Ann Arbor, MI, USA.
Ken ResnicowDepartment of Health Education and Health Behavior, University of Michigan School of Public Health, Ann Arbor, MI, USA.
Akbar K WaljeeVA Center for Clinical Management Research, VA Ann Arbor Healthcare System, Ann Arbor, MI, USA.
Sameer SainiDivision of Gastroenterology and Hepatology, University of Michigan Medicine, Ann Arbor, MI, USA.
Sarah HawleyVA Center for Clinical Management Research, VA Ann Arbor Healthcare System, Ann Arbor, MI, USA.
Melissa DejonckheereDepartment of Family Medicine, University of Michigan Medicine, Ann Arbor, MI, USA.
Megan RiehlDivision of Gastroenterology and Hepatology, University of Michigan Medicine, Ann Arbor, MI, USA.
Jessica NaftalyDivision of Gastroenterology and Hepatology, University of Michigan Medicine, Ann Arbor, MI, USA.
Christina JagielskiDivision of Gastroenterology and Hepatology, University of Michigan Medicine, Ann Arbor, MI, USA.
Nicholas HenryVA Center for Clinical Management Research, VA Ann Arbor Healthcare System, Ann Arbor, MI, USA.
Kathleen SwalwellVA Center for Clinical Management Research, VA Ann Arbor Healthcare System, Ann Arbor, MI, USA.
Peter D R HigginsDivision of Gastroenterology and Hepatology, University of Michigan Medicine, Ann Arbor, MI, USA.
Sarah L KreinVA Center for Clinical Management Research, VA Ann Arbor Healthcare System, Ann Arbor, MI, USA.

Funding

Developing a Self-Management Intervention to Improve Health Outcomes for Patients with Inflammatory Bowel DiseaseK23DK136928 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Shirley Ann Cohen-Mekelburg · 2024 to 2026
$582k
HSRD VA IK6 HX003399HSRD VA RCS 11-222NIDDK NIH HHS K23 DK136928NIH HHS K23DK136928U.S. Department of Veterans Affairs Research Career Scientist Award (RCS 11-222)
6 · The paper itself

Abstract

purposeSelf-management is critical to improving inflammatory bowel disease (IBD) health but challenging for patients. To inform the development of IBD self-management interventions and improve IBD health, our objective was to develop an in-depth understanding of factors that affect quality of life and health outcomes for patients with IBD.

methodsWe conducted semi-structured interviews of adult IBD patients with a recent flare drawn from two health system cohorts. We analyzed interview data using an inductive-deductive rapid qualitative analysis process to identify key domains by age (18-44 years, 45-64 years, ≥ 65 years) and cohort.

resultsWe conducted 55 total interviews. Participants in both cohorts and across all ages focused on five key domains that are critical to living well with IBD: 1) key skills required for living and dealing with IBD; 2) perceptions about living with and confidence in dealing with IBD; 3) impact of social support; 4) effects of stress and emotions; and 5) self-management tools and resources.

conclusionIBD self-management requires complex behavioral changes, including building several skills in recognizing and managing symptoms, managing diet and treatment, navigating care, and coping with unpredictability. Patients must work to build their confidence, avoid maladaptive thinking, and remain motivated despite setbacks. Addressing stress and mental health issues as well as eliciting social support are also critical to helping patients cope with IBD.

Indexed as

Inflammatory Bowel DiseasesQuality of LifeSelf-ManagementAdaptation, PsychologicalAdolescentAdultAgedCoping SkillsFemaleHumansMaleMiddle AgedQualitative ResearchSocial SupportStress, PsychologicalYoung AdultPatient reported outcomesPsychosocialQualitative researchSelf-management

Identifiers

PMID41917525
PMCPMC13331259

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.