Evidence map›Paper›PMID 41915664›Full record

ArticlePloS one2026

Participation of children and adolescents in healthcare, prevention and health research: A dot survey.

Yvonne Stefanie Jordan, Daniel Troitzsch, Nils Pfeuffer, Luisa Tischler, Samuel Tomczyk, Neeltje van den Berg

Abstract read
In one paragraph

Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Yvonne Stefanie JordanSection Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany.ORCID https://orcid.org/0000-0001-7648-3879
Daniel TroitzschSection Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany.
Nils PfeufferSection Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany.
Luisa TischlerSection Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany.
Samuel TomczykGerman Centre for Child and Adolescent Health (DZKJ), Greifswald/ Rostock site, Germany.ORCID https://orcid.org/0000-0002-2846-5489
Neeltje van den BergSection Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWhile adults are actively involved in medical decisions, this has long been neglected in the case of children and adolescents. Traditionally, parents and doctors make decisions for children, as children are often considered lacking cognitive maturity and the ability to make decisions. The involvement of children and adolescents can have many advantages. However, the needs of children and adolescents are not always sufficiently taken into account in the healthcare system.

objectiveThe aim of this study is to explore the opinions of children and adolescents as well as their parents with respect to the extent of participation across the three dimensions prevention, health care, and health research.

methodThe data was collected using the dot poster method. The survey was conducted at a public event both on site and online to ensure broad participation. The data was analyzed descriptively.

resultsA total of 87 people took part in the survey. Thereof, 30 were under 18 years old (34.5%). Overall, the participation of children and adolescents in areas of the healthcare system was supported. The extent of participation varied depending on the age of the population under consideration and the age of the respondents. Younger respondents tended to be in favor of leaving health decisions to their parents and wanted a lesser form of participation. Respondents over the age of 18 favored a higher degree of participation by children and adolescents, particularly in research.

conclusionThe results of this study emphasize the need to systematically examine and promote the participation of children and adolescents in the healthcare system. The differentiated consideration of the age groups enables a targeted approach and consideration of the different decision-making abilities. The results should serve as a basis for future research projects dealing with the development and implementation of participatory approaches in pediatric care and research.

Indexed as

Delivery of Health CarePatient ParticipationAdolescentAdultChildDecision MakingFemaleHumansMaleParentsSurveys and Questionnaires

Identifiers

PMID41915664
PMCPMC13037970

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.