ArticleThe Sociological review2020
'It's just limboland': Parental dementia and young people's life courses.
Article in The Sociological review, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Children and young people's experience of parental dementia: A systematic review.International journal of geriatric psychiatry · 2021Pooled it
- Spontaneous conversations as data in young-onset dementia research: a qualitative study.Frontiers in dementia · 2026Article
- Promoting Mental Health and Well-Being Among Adolescent Young Carers in Europe: A Cross-National Randomized Controlled Trial Study.Healthcare (Basel, Switzerland) · 2024Article
- Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias.International journal of environmental research and public health · 2023Article
- Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers.International journal of environmental research and public health · 2023Article
- iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers.International journal of environmental research and public health · 2022Article
- Research and Innovation for and with Adolescent Young Carers to Influence Policy and Practice-The European Union Funded "ME-WE" Project.International journal of environmental research and public health · 2022Article
- Childhood perspectives of parental young onset dementia: A qualitative data synthesis.Dementia (London, England) · 2022Article
- Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction.Dementia (London, England) · 2022Article
- Promoting Mental Health and Well-Being among Adolescent Young Carers in Europe: A Randomized Controlled Trial Protocol.International journal of environmental research and public health · 2021Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Drawing on narrative interviews from a study exploring the perceptions and experiences of children and young people who have a parent with young onset dementia, this article explores the ways in which the condition impacted their life courses. Dementia is degenerative, terminal and has an unpredictable timeframe that affected young people's time perspectives, life planning and the ways they conceptualized their lives. This article contributes to the literature around young people's life courses by illustrating how the concept of liminality can inform understandings of the impact of parental illness on the life course. Using a constructionist perspective we explore the impact of parental dementia on life planning in relation to education/career, mobilities and personal lives. For some, the future was a source of deep anxiety, whilst others were preoccupied with the present and unable to contemplate life beyond their parents' illness. On the whole, participants felt their lives were in 'limbo' until their parents' death. The data indicate that nuanced approaches towards the life course are required in order to better understand 'being in limbo' and to inform support.
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