ArticleChildren (Basel, Switzerland)2026
Disability Community Perspectives on Participation in Research and Studying Positive Health.
Article in Children (Basel, Switzerland), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
BACKGROUND/
objectivesDisability affects ~15.7 million children and ~67 million adults in the US, yet these individuals are typically under-represented in clinical research. Clinical research has increasingly broadened its focus on health outcomes to include "positive health," which reflects the capacity of an individual to adapt to challenges and the absence of disease.
methodsA mixed-methods approach is used to investigate disability community perspectives on research inclusion and the use of positive health as an outcome in the context of childhood-onset disability.
resultsNationally, about one-fourth (1/4) of adults with disabilities and parents/caregivers reported participating in
conclusionsA paradigm shift in how positive health is framed may enhance its relevance to disabilities. An action plan for researchers is derived as a pragmatic approach to strengthen the relevance, generalizability and impact of their research.
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