Evidence map›Paper›PMID 41888916›Full record

ArticleResearch involvement and engagement2026

Involvement: lessons from experience - a personal journey.

Peter Beresford

Abstract readLetter
In one paragraph

Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Peter BeresfordUniversity of East Anglia, Norwich, UK. pberes@essex.ac.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This article traces a personal journey in participation over half a century. It explores the origins of this journey, its beginnings in an in-depth local study of public participation in planning which set a broader agenda. It puts personal experience from a service user perspective in a broader research, ideological and policy context, explores the changing context of public and service user involvement; its widening scope and impact and developing understandings about it. The article highlights the emerging importance of inclusive involvement and ways of helping to achieve it as well as key innovations in participation – in its different aspects and policy fields. It considers different approaches to participation and introduces the idea of it as an interactionist project which addresses both the personal and political; biography and history.

Indexed as

Access and supportCo-productionDisabled peopleEmpowermentInclusionInteractionistInvolvementMad studiesNeoliberalismNew social movementsParticipationPopulismThe personal and politicalUser involvement

Identifiers

PMID41888916
PMCPMC13023206

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.