Evidence map›Paper›PMID 41887724›Full record

ArticleBMJ open quality2026

Improving care for complex brain disorders: insights from patient experiences in a Canadian brain medicine clinic.

Kayla Saul, Sarah Hanafi, Joseph Voronov, Sonam Dubey, Katherine Skowronski, Sarah Levitt, Sara Mitchell

Abstract read
In one paragraph

Article in BMJ open quality, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Kayla SaulUniversity of Toronto Faculty of Medicine, Toronto, Ontario, Canada kayla.saul@mail.utoronto.ca.ORCID 0009-0001-6917-1620
Sarah HanafiAzrieli Brain Medicine Fellowship Program, University of Toronto Faculty of Medicine, Toronto, Ontario, Canada.
Joseph VoronovSunnybrook Research Institute, Hurvitz Brain Sciences Program, Toronto, Ontario, Canada.
Sonam DubeySunnybrook Research Institute, Hurvitz Brain Sciences Program, Toronto, Ontario, Canada.
Katherine SkowronskiEvaluative Clinical Sciences, Sunnybrook Research Institute, Toronto, Ontario, Canada.
Sarah LevittUniversity of Toronto Faculty of Medicine, Toronto, Ontario, Canada.
Sara MitchellSunnybrook Research Institute, Hurvitz Brain Sciences Program, Toronto, Ontario, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveLittle is known about best practices in service delivery for people experiencing complex brain disorders (CBDs) involving affective, behavioural, and cognitive symptoms. We aimed to assess the experiences and perceived healthcare needs of patients at a Brain Medicine Clinic (BMC), using their insights to drive improvements in care delivery.

methodsWe contacted all patients seen in the BMC between May and July 2024 and recruited 15 participants. We conducted 30 min semi-structured interviews that were audio-recorded and transcribed verbatim. Line-by-line coding was performed inductively using NVivo V.14 software, followed by a thematic analysis to identify emerging themes and subthemes.

resultsThree main themes were identified as being related to care quality at the BMC: (1) Access, Navigation and Coordination, (2) Knowledge Translation and (3) Therapeutic Alliance. Based on these themes, three key practice recommendations were developed for care quality improvement, including (1) introducing a care navigator, (2) the provision of structured after-visit summaries and preparatory materials and (3) integrating empathy and communication training into the education of practitioners delivering this care.

conclusionsThe results support the need for and underscore the benefits of integrated care models in managing CBDs, such as a BMC. Future studies should evaluate the effects of implementing the proposed recommendations.

Indexed as

Brain DiseasesPatient SatisfactionQuality ImprovementAdultAgedCanadaFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchComplexityPatient-centred carePatient satisfactionQuality improvement

Identifiers

PMID41887724
PMCPMC13034354

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.