Evidence map›Paper›PMID 41887224›Full record

ArticleAmerican journal of human genetics2026

BLOC1S1 variants cause lysosomal and autophagic defects resulting in a hypomyelinating leukodystrophy with epileptic encephalopathy.

Raffaella De Pace, Carlos A Dominguez Gonzalez, Chad D Williamson, Guy Helman, Leslie E Sanderson, Brianna Disanza, Nicole Hsiao-Sánchez, Amy Pizzino, Kayla Muirhead, Joshua L Bonkowsky and 29 more

Abstract read
In one paragraph

Article in American journal of human genetics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

  • Update of
    2025
5 · Who and what money

Authors and funding

39 authors.

Raffaella De PaceDivision of Neurosciences & Cellular Structure, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, MD 20892, USA.
Carlos A Dominguez GonzalezDivision of Neurology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Chad D WilliamsonDivision of Neurosciences & Cellular Structure, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, MD 20892, USA.
Guy HelmanDivision of Neurology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Leslie E SandersonDepartment of Clinical Genetics, Erasmus MC University Medical Center, 3000 CA Rotterdam, the Netherlands.
Brianna DisanzaDivision of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Center for Applied Genomics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Nicole Hsiao-SánchezDivision of Neurosciences & Cellular Structure, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, MD 20892, USA.
Amy PizzinoDivision of Neurology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Kayla MuirheadDivision of Neurology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Joshua L BonkowskyDivision of Pediatric Neurology, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, UT 84113, USA.
Ryan J TaftIllumina, Inc., San Diego, CA 92122, USA.
Nouriya A SannaaJohn Hopkins Aramco Health Care, Gharb Al Dhahran, Dhahran 31311, Saudi Arabia.
Patricia DiasServiço de Genética Médica, Unidade Local de Saúde de Santa Maria, 1649-035 Lisboa, Portugal.
Ana Sofia QuintasServiço de Pediatria - Unidade de Neuropediatria, Unidade Local de Saúde de Santa Maria, 1649-028 Lisboa, Portugal.
Mehmet Burak MutluDETAGEN Genetic Disease Evaluation Center, Kayseri, Kayseri Province 38000, Turkey.
Hasan BasIntergen Genetics and Rare Diseases Diagnosis Center, Ankara 06510, Turkey.
Hasan OztürkIntergen Genetics and Rare Diseases Diagnosis Center, Ankara 06510, Turkey.
Majid MojarradDepartment of Medical Genetics, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad 91771, Iran; Medical Genetics Research Center, Mashhad University of Medical Sciences, Mashhad, Iran; Genetic Foundation of Khorasan Razavi, Mashhad 91771, Iran.
Masoome AlerasoolDepartment of Medical Genetics, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad 91771, Iran; Medical Genetics Research Center, Mashhad University of Medical Sciences, Mashhad, Iran; Genetic Foundation of Khorasan Razavi, Mashhad 91771, Iran.
Shahriar SheikhaniPediatric Department, Valiasr Hospital, Birjand University of Medical Sciences, Birjand 97179 64151, Iran.
Hayder Kadhim JabbarDepartment of Paediatrics, Al-Sayyab Teaching Hospital, Basrah 61030, Iraq.
Awatif Hameed IssaDepartment of Neurology, University of Basrah, Basrah 61004, Iraq.
Henry HouldenDepartment of Neuromuscular Diseases, UCL Institute of Neurology, WC1N 3BG London, UK.
Emir ZonicCENTOGENE GmbH, 18055 Rostock, Germany.
Tahsin Stefan BarakatDepartment of Clinical Genetics, Erasmus MC University Medical Center, 3000 CA Rotterdam, the Netherlands.
Kornelia TripolskiCENTOGENE GmbH, 18055 Rostock, Germany.
Antonio RomitoCENTOGENE GmbH, 18055 Rostock, Germany.
Eden TeferedegnDivision of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Center for Applied Genomics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Arastoo VossoughDepartment of Radiology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Department of Radiology, Perelmann School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, USA.
Matthew T WhiteheadDepartment of Radiology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Department of Radiology, Perelmann School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, USA.
Elizabeth BhojDivision of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Center for Applied Genomics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Rebecca C Ahrens-NicklasDivision of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
Cas SimonsCenter for Population Genomics, Murdoch Children's Research Institute, Melbourne, VIC 3052, Australia; Centre for Population Genomics, Garvan Institute of Medical Research and UNSW Sydney, Sydney, NSW 2011, Australia.
Ernst WolvetangStem Cell Engineering Group, Australian Institute for Bioengineering and Nanotechnology, University of Queensland, Brisbane, QLD 4067, Australia.
Tjakko J van HamDepartment of Clinical Genetics, Erasmus MC University Medical Center, 3000 CA Rotterdam, the Netherlands.
Aida M Bertoli-AvellaCENTOGENE GmbH, 18055 Rostock, Germany.
Reza MaroofianDepartment of Neuromuscular Diseases, UCL Institute of Neurology, WC1N 3BG London, UK.
Juan S BonifacinoDivision of Neurosciences & Cellular Structure, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, MD 20892, USA.
Adeline VanderverDivision of Neurology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA; Department of Neurology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, USA. Electronic address: vandervera@chop.edu.

Funding

Protein Trafficking In The Endosomal-Lysosomal SystemZIAHD001607 · NICHD · EUNICE KENNEDY SHRIVER NATIONAL INSTITUTE OF CHILD HEALTH & HUMAN DEVELOPMENT · PI BONIFACINO, JUAN · 2009 to 2025
$48.3M
Validation of the GMFC-MLDU54NS115052 · NINDS · CHILDREN'S HOSP OF PHILADELPHIA · PI Laura Ann Adang, FLORIAN S EICHLER · 2019 to 2026
$14.3M
Intramural NIH HHS ZIA HD001607NINDS NIH HHS U54 NS115052
6 · The paper itself

Abstract

BLOC1S1 encodes a subunit shared by the BLOC-1 and BLOC-one-related complex (BORC) hetero-octameric complexes that regulate various endolysosomal processes. Here, we report the identification of seven distinct variants in BLOC1S1 in 11 individuals from seven independent families presenting with early psychomotor delay, hypotonia, spasticity, epileptic encephalopathy, optic atrophy, and leuko-axonopathy with hypomyelination. A subset of the affected individuals also have features of hypopigmentation and ocular albinism that are similar, although milder, than those of individuals with BLOC-1-related Hermansky-Pudlak syndrome. Functional analyses show that BLOC1S1 knockout (KO) impairs the anterograde transport of lysosomes and autophagy in both non-neuronal cells and induced pluripotent stem cell (iPSC)-derived neurons. Transfection experiments reveal that most BLOC1S1 variants exhibit reduced expression, decreased assembly with other BORC/BLOC-1 subunits, and/or impaired restoration of lysosome transport and autophagy in BLOC1S1-KO cells. Additionally, we show that KO of BLOC1S1 reduces pigmentation in a melanocytic cell line and that five of the BLOC1S1 variants partially or fully restore pigmentation. These findings provide genetic, clinical, and functional evidence that loss of function (LoF) of BLOC1S1 leads to more pronounced deficits in BORC than BLOC-1 function. We conclude that the bi-allelic BLOC1S1 variants characterized here primarily result in a neurological disorder with prominent leukodystrophy, similar to the recently reported condition caused by variants in the BORCS8 subunit of BORC. Together, these findings establish BORCopathies as a distinct disease entity.

Indexed as

AutophagyHereditary Central Nervous System Demyelinating DiseasesLysosomesNerve Tissue ProteinsAdolescentChildChild, PreschoolFemaleHumansInduced Pluripotent Stem CellsInfantMaleMutationNeuronsPedigreeBLOC1S1 protein, humanNerve Tissue ProteinsautophagyBLOC-1BLOC1S1BORCleukodystrophylysosomesneurodevelopmental disorder

Identifiers

PMID41887224
PMCPMC13087471

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.