ArticleJournal of sickle cell disease2026
Low depression rates among caregivers of young children with sickle cell disease: a rapid report.
Article in Journal of sickle cell disease, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Sickle cell disease (SCD) can bring lifelong challenges; new research reveals that caregivers of very young children with SCD do not experience high levels of depression on a short screening tool called the PROMIS. In a study of 47 caregivers of children 0-5 years old with SCD, 94% responded similarly to the general population, with 3 (6%) caregivers reporting elevated depression. These findings suggest a potential window of opportunity to connect caregivers of children with SCD to early interventions and family support. These early years may represent an optimal time for preventive interventions. Clinicians could refer to and implement family-centered support programs in the first years of life, rather than waiting and responding if crises emerge and disease complications may intensify. The findings suggest that preventive care could leverage existing family strengths during these early years. This approach could inform how we support families navigating pediatric chronic illness, potentially altering long-term outcomes for both children and their caregivers.
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