Evidence map›Paper›PMID 41883515›Full record

ArticlePalliative care and social practice2025

Bridging inequities in palliative and end-of-life care: The role and experiences of community connectors.

Jodi Emma Wainwright, Erica Jane Cook, Nasreen Ali, Emma Wilkinson, Gurch Randhawa

Abstract read
In one paragraph

Article in Palliative care and social practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jodi Emma WainwrightInstitute for Health Research, University of Bedfordshire, Luton, UK.ORCID https://orcid.org/0000-0002-6297-499X
Erica Jane CookSchool of Psychology, University of Bedfordshire, Luton, UK.ORCID https://orcid.org/0000-0003-4369-8202
Nasreen AliInstitute for Health Research, University of Bedfordshire, Luton, UK.
Emma WilkinsonInstitute for Health Research, University of Bedfordshire, Luton, UK.
Gurch RandhawaInstitute for Health Research, University of Bedfordshire, Luton, UK.ORCID https://orcid.org/0000-0002-2289-5859

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The Community Connectors programme is a UK pilot initiative designed to bridge gaps between cancer, palliative, and end-of-life care services and diverse ethnic and faith communities. Community Connectors are local individuals with strong cultural insight who enhance two-way communication, increase awareness of care services, and address the unique needs of seldom-heard groups, including South Asian, Black African-Caribbean, and Eastern European communities. By engaging trusted community members, the programme aims to foster relationships, empower communities, and improve understanding of cancer and palliative care pathways among underserved populations. Objective: To explore the experiences and perspectives of Community Connectors implementing this model, with a focus on feasibility, acceptability, and perceived impact within target communities. Methods: A qualitative longitudinal design was employed using linked interviews and reflective diaries. A qualitative descriptive approach was used to explore evolving perceptions of the role, community engagement, and barriers to care access. Semi-structured interviews ( Results: Community Connectors reported success in building trust and relationships within the community, emphasising that trust, integrity, and passion for the role were more important than financial reward. Initially, there was confusion about the role, with expectations of marketing work evolving into a focus on research and engagement. They faced several challenges, including time constraints linked to the part-time nature of the role, as well as cultural sensitivities, language barriers, and stigma around cancer. Despite difficulties in measuring impact, Connectors reported personal growth, strong community relationships, and a sense of reward from their involvement. Conclusion: The Community Connector model is a feasible and culturally responsive approach to improving access to cancer and palliative care in underserved communities. Future programmes should provide clearer role definitions, sustained funding, and training in emotional resilience and cultural competence. Further research is needed to assess the long-term impact of this model on health outcomes and its integration into mainstream health services.

Indexed as

cancerCommunity Connectorsethnic minoritieshealth inequalitiespalliative and end-of-life care

Identifiers

PMID41883515
PMCPMC13009750

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.