Evidence map›Paper›PMID 41867659›Full record

ArticleNeurodiversity (Thousand Oaks (Ventura County, Calif.))

Underrepresentation of Females and Racial and Ethnic Minority Groups in Research on Pragmatic Language in Autism: A Scoping Review.

Gary E Martin, Sarah Ethridge, Maureen Butler, Emily Landau, Janna Guilfoyle, Stephanie Crawford, Mitra Kumareswaran, Jiayin Xing, Gabrielle Fragnito, Molly Losh

Abstract read
In one paragraph

Article in Neurodiversity (Thousand Oaks (Ventura County, Calif.)). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Gary E MartinDepartment of Communication Sciences and Disorders, St. John's University, Queens, NY, USA.
Sarah EthridgeRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Maureen ButlerRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Emily LandauRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Janna GuilfoyleRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Stephanie CrawfordRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Mitra KumareswaranRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Jiayin XingRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Gabrielle FragnitoRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.
Molly LoshRoxelyn and Richard Pepper Department of Communication Sciences and Disorders, Northwestern University, Evanston, IL, USA.

Funding

A Family-Genetic Study of Autism and Fragile X SyndromeR01MH091131 · NIMH · NORTHWESTERN UNIVERSITY · PI Molly C Losh · 2012 to 2026
$10.1M
A Family-Genetic Study of Language in AutismR01DC010191 · NIDCD · UNIV OF NORTH CAROLINA CHAPEL HILL · PI Molly C Losh · 2010 to 2026
$7.8M
A cross-linguistic, family-genetic study of language in autism and the broad autism phenotypeR01DC021849 · NIDCD · NORTHWESTERN UNIVERSITY · PI Molly C Losh · 2024 to 2026
$1.9M
Defining the female pragmatic language profile of autism and the broad autism phenotypeR01DC022484 · NIDCD · NORTHWESTERN UNIVERSITY · PI Molly C Losh, Gary Everett Martin · 2025 to 2026
$1.4M
NIDCD NIH HHS R01 DC010191NIDCD NIH HHS R01 DC021849NIDCD NIH HHS R01 DC022484NIMH NIH HHS R01 MH091131
6 · The paper itself

Abstract

Differences in language use in social contexts (i.e., pragmatics, such as conversational ability) serve as a defining clinical feature of autism, which can have an important impact on social functioning and well-being in a neurotypical society. Despite decades of research, most studies have not included representative samples, calling into question the generalizability of findings. This scoping review evaluates reporting practices and representation of autistic females and individuals from racially, ethnically (Hispanic/Latine), and linguistically diverse backgrounds. An initial pool of >1,800 articles were individually reviewed using a detailed coding system of exclusionary criteria, resulting in 308 empirical studies of pragmatic language in autism that were subjected to fine-grained analysis. Approximately 80% of studies reported sex, and about 70% documented language spoken. However, race and ethnicity were reported in less than 10% of studies. When reported, females and individuals from racial/ethnic minority backgrounds were starkly underrepresented. Reporting rates increased over time (1977-2022) for sex, ethnicity, and language spoken, and representation improved for racial minority groups and non-English speakers. Evidence suggests a striking bias towards inclusion of White, non-Hispanic/non-Latine males. This lack of representation has critical implications for interpretations of extant literature on pragmatics in autism, relevant to clinical characterization and future research.

Indexed as

autismconversationethnicityfemalesgirlsnarrativepragmatic languageracesex

Identifiers

PMID41867659
PMCPMC13004128

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.