Evidence map›Paper›PMID 41865350›Full record

ArticlePediatric surgery international2026

"It's a journey": Psychosocial perspectives on parenting a young child with esophageal atresia.

Lianne Cole, Rosella Micalizzi, John Bennett, Kaylee Woods, Lauren Cardoni, Leah Frain, Abdimajid Mohamed, Jessica Yasuda, Peter Ngo, Anke Widenmann and 3 more

Abstract read
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In one paragraph

Article in Pediatric surgery international, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Lianne ColeEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA. lianne.cole@childrens.harvard.edu.
Rosella MicalizziEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA.
John BennettEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA.
Kaylee WoodsEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA.
Lauren CardoniEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA.
Leah FrainEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA.
Abdimajid MohamedEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA.
Jessica YasudaDivision of Gastroenterology, Hepatology and Nutrition, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, 02115, USA.
Peter NgoDivision of Gastroenterology, Hepatology and Nutrition, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, 02115, USA.
Anke WidenmannEAT (Esophageal Atresia Global Support Groups), Sommerrainstr. 61, 70374, Stuttgart, Germany.
Graham SlaterEAT (Esophageal Atresia Global Support Groups), Sommerrainstr. 61, 70374, Stuttgart, Germany.
Benjamin ZendejasEsophageal and Airway Treatment Center, Department of Pediatric General Surgery, Boston Children's Hospital, Harvard Medical School, 300 Longwood Ave, Boston, MA, 02115, USA.
Michaela Dellenmark-BlomDepartment of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Gothenburg, 416 85, Sweden.

Funding

ALF Grants from Region of Västra Götaland ALFGBG-978335; ALF GBG-942815
6 · The paper itself

Abstract

backgroundEsophageal atresia (EA) is a rare congenital condition often accompanied by lifelong medical challenges. The complex and ongoing needs of children with EA place substantial demands on their parents. The purpose of this study was to explore the psychosocial experiences of parents caring for a child with EA during early childhood.

methodsA qualitative descriptive design was employed involving five focus groups with 22 parents of children aged 0–7 years with EA. Manifest content analysis with an inductive approach was used. Data saturation was achieved across and within groups.

resultsThree major categories emerged: 1) A journey that changes over time, capturing the evolving emotional and practical challenges that parents faced; 2) Emotional experiences, highlighting a range of emotional responses navigated by parents and 3) Impact on family and social life, describing the strained family dynamics, altered social interactions, and parents’ feelings of isolation.

conclusionParenting a young child with EA presents profound emotional and social challenges that extend well beyond the neonatal period. Integrated mental health services, peer support initiatives, and comprehensive, family-centered multidisciplinary care should be considered standard components of EA management, given the profound and lasting impact of the condition on family functioning and well-being.

Indexed as

Esophageal AtresiaParentingParentsAdultChildChild, PreschoolFemaleFocus GroupsHumansInfantInfant, NewbornMaleQualitative ResearchEsophageal atresiaParent impactPsychological experiencesQualitative research

Identifiers

PMID41865350

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.