Co-creating support: a participatory research approach to developing a group intervention program for parents of children diagnosed with cancer.

backgroundParents of children diagnosed with cancer face significant psychosocial challenges, yet their needs often remain insufficiently addressed within existing services networks. Few interventions documented their clear theoretical foundations or mechanisms of action, limiting understanding of how specific components lead to meaningful outcomes, particularly those valued by parents themselves. To address these gaps, a community-based participatory research initiative was launched by a community paediatric cancer association in collaboration with academic researchers. The current article focuses on co-developing an intervention model to support the well-being of parents whose child has recently received a cancer diagnosis.

methodsUsing an iterative modified Delphi process (series of questionnaires and focus groups), we engaged parents and clinicians to document their perspectives on the essential components of a parent-focused psychosocial intervention. Twenty-one participants (14 parents, 7 clinicians) contributed to this phase of the larger initiative. The mixed-methods data provided quantitative data analyzed using descriptive statistics and qualitative data analyzed using thematic analysis.

resultsThis collaborative process led to the development of “Me for Us,” a structured parental group intervention. This manualized, eight-session program was designed to enhance parents’ psychological well-being and their capacity to support their child and family.

conclusionsGrounded in principles of Acceptance and Commitment Therapy, “Me for Us” focuses on informational resources, self-care strategies, emotional regulation, peer support, and parent–child relationships. Key mechanisms such as small size group, co-facilitation by a mental health professional, and including a parent-partner with lived experiences are discussed.