ArticleHealth research policy and systems2026
Barriers and opportunities for participation in health policy decision-making by civil society groups organized for cancer in Chile: a qualitative study.
Article in Health research policy and systems, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundSocial participation, a principle that has guided health reform processes globally, presents diverse barriers according to the political and social context, obstructing its effective exercise. This study examines the perceptions of various stakeholders regarding the barriers and opportunities for social participation in decision-making processes within Chile's National Cancer Plan and Law framework.
methodsA qualitative multiple-case study design (cases: politicians, academics, decision-makers, organisations) was employed. A total of 28 semi-structured online interviews were conducted with stakeholders involved in the planning and implementation of the National Cancer Plan and Law, as well as with its beneficiaries. Thematic analysis was carried out through the analytical framework method, a systematic and flexible approach to analysing qualitative data. Approved by the Scientific Ethics Committee of the Universidad del Desarrollo, Chile.
resultsThe main perceived barriers were classified into four areas: (a) disarticulation of civil society organisations, (b) lack of validation of organisations in decision-making processes, (c) lack of access to information and (d) lack of tools for the professionalisation of organisations. Opportunities for action are proposed that involve joint actions from all actors in a paradigm shift exercise on social participation in health, and the degree of involvement that all stakeholders should have to achieve more significant equity in participation.
conclusionsThe results suggest that persistent barriers to effective participation exist, primarily due to power imbalances and the dominance of biomedical perspectives. The findings emphasize the importance of authorities and decision-makers acknowledging the value of knowledge from civil society to encourage collaborative and sustained work that transcends individual leaders and governments.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.