Evidence map›Paper›PMID 41840380›Full record

ArticleBMC public health2026

COCCOS: a blueprint transition program for young people with chronic conditions using experience-based co-design.

Natwarin Janssens, Lisa Van Wilder, Karsten Vanden Wyngaert, Ann Van Hecke, Kim Van Hoorenbeeck, Ellen Dupont, Morgane Moerkens, Delphine De Smedt, Eva Goossens

Abstract readMulticenter Study
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Natwarin JanssensDepartment of Nursing and Midwifery, Faculty of Medicine and Health Sciences, University of Antwerp, Antwerp, Belgium. natwarin.janssens@uantwerpen.be.
Lisa Van WilderDepartment of Public Health and Primary Care, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
Karsten Vanden WyngaertGhent University Hospital, Ghent, Belgium.
Ann Van HeckeDepartment of Public Health and Primary Care, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
Kim Van HoorenbeeckDepartment of Pediatrics, Antwerp University Hospital, Antwerp, Belgium.
Ellen DupontZeepreventorium, De Haan, Belgium.
Morgane MoerkensZeepreventorium, De Haan, Belgium.
Delphine De Smedt *Department of Public Health and Primary Care, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
Eva Goossens *Department of Nursing and Midwifery, Faculty of Medicine and Health Sciences, University of Antwerp, Antwerp, Belgium.

Funding

Fonds Wetenschappelijk Onderzoek G066622N
6 · The paper itself

Abstract

backgroundAdolescents and young adults (AYAs) with chronic conditions are expected to transfer from pediatric to adult healthcare services during adolescence. Up to 40% experience disruption in care during their transfer. To prevent adverse health outcomes, structured healthcare transition (HCT) programs are recommended, emphasizing early preparation and guidance. Despite this, many existing programs focus on more complex conditions, are implemented ad hoc and follow a top-down design approach. This study aimed to co-design a HCT program for AYAs with less complex chronic conditions, actively involving stakeholders at multiple levels in Flanders, Belgium.

methodsA multicenter, participatory study was conducted using the accelerated Experience-Based Co-Design methodology. Participants included AYAs (aged 15–22y) diagnosed with obesity, type 1 diabetes, or asthma, along with their parents and healthcare providers. The process encompassed seven consecutive stages: observations, interviews/focus groups, trigger film development, feedback sessions, co-design workshops and an evaluation. Photovoice was incorporated as a complementary method to capture AYA’s lived experiences at the interview stage.

resultsThe study engaged 21 AYAs, five parents, and 45 healthcare providers as co-designers of the HCT program. Together, they defined the essential components of an effective HCT. Four key moments were identified: (i) introducing HCT, (ii) a split visit, (iii) a joint consultation and (iv) a feedback moment following the actual transfer to adult care. An individualized HCT plan was deemed mandatory to provide guidance and structure in HCT for AYAs and healthcare providers.

conclusionEffective healthcare transition is critical to mitigating negative health outcomes among AYAs with chronic conditions. This study offers a set of stakeholder-derived, minimum criteria for a person-centered HCT program, co-designed to address the needs of those involved.

Indexed as

Transition to Adult CareAdolescentAsthmaBelgiumChronic DiseaseDiabetes Mellitus, Type 1FemaleFocus GroupsHumansMaleProgram DevelopmentProgram EvaluationYoung AdultChronic conditionsCo-creationHealthcare transitionParticipatory action researchTransition programYouth

Identifiers

PMID41840380
PMCPMC13107873

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.