Evidence map›Paper›PMID 41834058›Full record

ArticleResearch involvement and engagement2026

Co-designing suicide prevention research with mothers of suicidal adolescents - applying McKercher's Model of Care.

Demee Rheinberger, Katherine Boydell, Susanne Oliver Armstrong, Julia Lessing, Sally Ann Pollard, Inger Jacob, Lauren McGillivray, Emma Elder, Fiona Shand

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Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

9 authors.

Demee RheinbergerBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia. d.rheinberger@blackdog.org.au.
Katherine BoydellBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.
Susanne Oliver ArmstrongBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.
Julia LessingBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.
Sally Ann PollardBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.
Inger JacobBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.
Lauren McGillivrayBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.
Emma ElderBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.
Fiona ShandBlack Dog Institute, University of New South Wales, Hospital Road, Randwick, NSW, 2031, Australia.

Funding

Australian Government Research Training Program Scholarship NA
6 · The paper itself

Abstract

backgroundCo-design involves a collaborative approach which prioritises doing with, rather than for, the end user. Such practices have numerous benefits for the design and implementation of suicide prevention initiatives.While rigid co-design processes may limit the flexibility of co-design processes, following guiding principles may facilitate successful co-design while maintaining adaptability. As such, this project sought to outline how following McKercher's Model of Care approach in collaboration with co-design practices can be utilised to inform the co-design of a suicide prevention research study.

methodsUsing the guiding principles of the Model of Care approach, six lived experience (LE) advisors and the project lead engaged in a co-design process. The approach was used to facilitate co-design in planning the project, identifying learning goals for the research team, reviewing ways of working together before and after key stages, and to provide an understanding of co-design methods.

resultsMcKercher's Model of Care approach prioritises compassion and kindness while focusing on a difficult experience. The results outlined how we adhered to the Model while working with individuals with lived experience of supporting a suicidal adolescent. By building supportive relationships, offering healing and support, building on LE advisors' strengths, providing compensation and acknowledgement, sticking to our promises, and celebrating and grieving together we successfully conducted co-designed suicide prevention research. Perspectives from LE advisors are provided as well as an outline of the co-design process.

conclusionsThis is the first paper to outline how McKercher's Model of Care approach was integrated into co-designed suicide prevention research and provides evidence of the benefit achieved following guiding principles in collaboration with co-design practices. This work also suggests that co-design participation may have a therapeutic benefit by supporting post-traumatic growth, both for individuals and their families, when it is conducted in a way which prioritises compassion and capacity building.

Indexed as

AdolescentsCo-designCommunity engagementLived experienceModel of CareParentsSuicide prevention

Identifiers

PMID41834058
PMCPMC12990445

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.